Evaluation of a collaborative model for consumer research panels in cancer research networks

Brown, Viviene, Cotterell, Phil, Sitzia, John, Richardson, Alison, Kelley, Kate and Willers, Rosemary (2006) Evaluation of a collaborative model for consumer research panels in cancer research networks Macmillan Cancer Support 181pp.

Abstract

This report presents the findings of an independent evaluation of a pilot scheme to set up a Consumer Research Panel in each of three cancer research networks in England. ‘Consumer Research Panels’ (CRPs) are groups of consumers – meaning cancer patients, carers, and other people affected by cancer – who work with cancer researchers in a variety of ways with the intention of improving the relevance, quality or conduct of a research study. Examples of ‘consumer involvement’ activities in cancer research in the UK have appeared in the literature since the mid 1980s, and include ad-hoc involvement in discrete projects and involvement in the work of national cancer research bodies, such as the NCRI. Consumer involvement in the context of cancer research networks appears scarce however, with a pioneering CRP in the North Trent region being the only well-documented initiative prior this current pilot scheme.

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Contributors

Author: Alison Richardson

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