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Assessing palliative care outcomes for people with motor neurone disease living at home

Assessing palliative care outcomes for people with motor neurone disease living at home
Assessing palliative care outcomes for people with motor neurone disease living at home
A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND.
palliative care, outcome measures, implementation, motor neurone disease (mnd), amyotrophic lateral sclerosis (als), living at home
1357-6321
449-453
Hughes, R.A.
2d068788-610f-478f-9bcb-0e65edaaa072
Aspinal, F.
feaf34ed-bd3a-4e65-966e-e3840c5ed49a
Higginson, I.J.
2353c308-d776-4899-a097-5a598bdc1c32
Addington-Hall, J.
87560cc4-7562-4f9b-b908-81f3b603fdd8
Dunckley, M.
1ea4fc8f-b8b6-4ff5-858c-6abda1215410
Faull, C.
e1541bc6-3cbb-4320-baa2-baec342c2b0a
Sinha, A.
776e8409-b80c-422a-81e9-85b1db494654
Hughes, R.A.
2d068788-610f-478f-9bcb-0e65edaaa072
Aspinal, F.
feaf34ed-bd3a-4e65-966e-e3840c5ed49a
Higginson, I.J.
2353c308-d776-4899-a097-5a598bdc1c32
Addington-Hall, J.
87560cc4-7562-4f9b-b908-81f3b603fdd8
Dunckley, M.
1ea4fc8f-b8b6-4ff5-858c-6abda1215410
Faull, C.
e1541bc6-3cbb-4320-baa2-baec342c2b0a
Sinha, A.
776e8409-b80c-422a-81e9-85b1db494654

Hughes, R.A., Aspinal, F., Higginson, I.J., Addington-Hall, J., Dunckley, M., Faull, C. and Sinha, A. (2004) Assessing palliative care outcomes for people with motor neurone disease living at home. International Journal of Palliative Nursing, 10 (9), 449-453.

Record type: Article

Abstract

A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND.

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More information

Published date: September 2004
Keywords: palliative care, outcome measures, implementation, motor neurone disease (mnd), amyotrophic lateral sclerosis (als), living at home

Identifiers

Local EPrints ID: 23984
URI: http://eprints.soton.ac.uk/id/eprint/23984
ISSN: 1357-6321
PURE UUID: 6e5d7b9c-38b1-4588-a1e2-836948db6f81

Catalogue record

Date deposited: 17 Mar 2006
Last modified: 08 Jan 2022 06:50

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Contributors

Author: R.A. Hughes
Author: F. Aspinal
Author: I.J. Higginson
Author: M. Dunckley
Author: C. Faull
Author: A. Sinha

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