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A phase I-II feasibility trial of cancer carer medicines management: an overview

A phase I-II feasibility trial of cancer carer medicines management: an overview
A phase I-II feasibility trial of cancer carer medicines management: an overview
Introduction: eventy-onepercent of people with cancer experience pain at the end of life (Teunissen et al 2007). It is well established that family carers play a significant role in managing pain medication. Our scoping exercise of international literature repeatedly found that family carers lack information and confidence, with some holding beliefs that pain cannot be controlled and concerns about medication becoming addictive. Carers' roles have been neglected, with few interventions concerning pain management focusing specifically on carers, and a particular lack of UK research.

Aims and methods: a Phase I-II feasibility study, funded by Dimbleby Marie Curie, is being conducted (2013–2015) to develop a new Cancer Carer Medicines Management intervention and to test its feasibility, acceptability and efficacy to improve carers' knowledge, beliefs, skills and self-efficacy for pain medicines management, decrease carer strain and improve mood state. This will be achieved through: a rapid appraisal of research on interventions for carer management of end of life pain medicines; development and refinement of the intervention through user collaboration; and a feasibility trial involving nurses and carers in two sites, to inform a follow-on randomised control trial.

Results: phase I will produce an educational intervention for delivery by palliative care nurses with family carers. Phase II will evaluate intervention impact on carer outcomes using validated questionnaires measuring carer pain medication knowledge, beliefs and skills; carer strain, self-efficacy and mood state. Secondary outcomes from validated questionnaires and interviews will include perceptions of patient pain, burden of the intervention, and factors inhibiting or facilitating intervention use
2045-435X
130-131
Latter, S.
83f100a4-95ec-4f2e-99a5-186095de2f3b
Hopkinson, J.B.
94af3631-78f6-4057-baaf-e5832dfd9439
Richardson, A.
3db30680-aa47-43a5-b54d-62d10ece17b7
Lowson, E.
a2a98b7a-9f95-4148-888e-72979b45c4d6
Duke, S.
f0dc024d-f940-4f43-b5f9-adab34833ce7
Anstey, S.
6a89b61a-db16-4963-a374-264d70e1f991
Bennett, M.
e42f5213-4410-4284-9e96-74e359df6b19
Smith, P.W.F.
961a01a3-bf4c-43ca-9599-5be4fd5d3940
May, C.
17697f8d-98f6-40d3-9cc0-022f04009ae4
Latter, S.
83f100a4-95ec-4f2e-99a5-186095de2f3b
Hopkinson, J.B.
94af3631-78f6-4057-baaf-e5832dfd9439
Richardson, A.
3db30680-aa47-43a5-b54d-62d10ece17b7
Lowson, E.
a2a98b7a-9f95-4148-888e-72979b45c4d6
Duke, S.
f0dc024d-f940-4f43-b5f9-adab34833ce7
Anstey, S.
6a89b61a-db16-4963-a374-264d70e1f991
Bennett, M.
e42f5213-4410-4284-9e96-74e359df6b19
Smith, P.W.F.
961a01a3-bf4c-43ca-9599-5be4fd5d3940
May, C.
17697f8d-98f6-40d3-9cc0-022f04009ae4

Latter, S., Hopkinson, J.B., Richardson, A., Lowson, E., Duke, S., Anstey, S., Bennett, M., Smith, P.W.F. and May, C. (2013) A phase I-II feasibility trial of cancer carer medicines management: an overview. BMJ Supportive & Palliative Care, 3 (1), 130-131. (doi:10.1136/bmjspcare-2013-000453b.18).

Record type: Article

Abstract

Introduction: eventy-onepercent of people with cancer experience pain at the end of life (Teunissen et al 2007). It is well established that family carers play a significant role in managing pain medication. Our scoping exercise of international literature repeatedly found that family carers lack information and confidence, with some holding beliefs that pain cannot be controlled and concerns about medication becoming addictive. Carers' roles have been neglected, with few interventions concerning pain management focusing specifically on carers, and a particular lack of UK research.

Aims and methods: a Phase I-II feasibility study, funded by Dimbleby Marie Curie, is being conducted (2013–2015) to develop a new Cancer Carer Medicines Management intervention and to test its feasibility, acceptability and efficacy to improve carers' knowledge, beliefs, skills and self-efficacy for pain medicines management, decrease carer strain and improve mood state. This will be achieved through: a rapid appraisal of research on interventions for carer management of end of life pain medicines; development and refinement of the intervention through user collaboration; and a feasibility trial involving nurses and carers in two sites, to inform a follow-on randomised control trial.

Results: phase I will produce an educational intervention for delivery by palliative care nurses with family carers. Phase II will evaluate intervention impact on carer outcomes using validated questionnaires measuring carer pain medication knowledge, beliefs and skills; carer strain, self-efficacy and mood state. Secondary outcomes from validated questionnaires and interviews will include perceptions of patient pain, burden of the intervention, and factors inhibiting or facilitating intervention use

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More information

Published date: March 2013
Venue - Dates: conference; 2013-03-01, 2013-03-01
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 349572
URI: http://eprints.soton.ac.uk/id/eprint/349572
ISSN: 2045-435X
PURE UUID: 5ef3ea91-0153-4b6e-96d7-d5278c9c73a4
ORCID for S. Latter: ORCID iD orcid.org/0000-0003-0973-0512
ORCID for A. Richardson: ORCID iD orcid.org/0000-0003-3127-5755
ORCID for S. Duke: ORCID iD orcid.org/0000-0002-4058-8086
ORCID for P.W.F. Smith: ORCID iD orcid.org/0000-0003-4423-5410
ORCID for C. May: ORCID iD orcid.org/0000-0002-0451-2690

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Date deposited: 08 Mar 2013 11:13
Last modified: 15 Mar 2024 03:34

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Contributors

Author: S. Latter ORCID iD
Author: J.B. Hopkinson
Author: A. Richardson ORCID iD
Author: E. Lowson
Author: S. Duke ORCID iD
Author: S. Anstey
Author: M. Bennett
Author: P.W.F. Smith ORCID iD
Author: C. May ORCID iD

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