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Connecting local support: a qualitative study exploring the role of voluntary organisations in long-term condition management

Connecting local support: a qualitative study exploring the role of voluntary organisations in long-term condition management
Connecting local support: a qualitative study exploring the role of voluntary organisations in long-term condition management
OBJECTIVES:
To examine the role of community groups to support people living with long-term conditions and the organisational factors that influence this role.

METHODS:
Thirty-three semi-structured interviews were conducted with voluntary group organisers purposefully sampled in Greater Manchester from a local database of community groups. Interviews explored the organisations role in supporting people living with a long-term condition, their social networks and the origins of the groups.

RESULTS:
Respondents' construed their role in supporting individual capacity for management either explicitly (e.g. providing exercise) or implicitly (e.g. emotional support). This role was influenced by a combination of group ideology, funding and social networks. Analysis highlights the role of the non-clinical setting, the social support provided within the group, as well as organisational processes that influenced their capacity to support people living with long-term conditions.

CONCLUSION:
By examining the organisation of voluntary groups, this study highlights the way in which they may support or constrain access to an extended range of support for people with long-term conditions. This paper has implications for commissioning of services by the health service from the third sector because of the differing ideological perspectives and limited operational capacity
long-term conditions, self-management, voluntary groups, social networks, qualitative
1742-3953
140-155
Morris, Rebecca
bd538c3b-0048-4e59-a61d-54335a4aeac1
Kirk, Susan
1d9ea73e-52d1-43a6-bf55-e385d94098f2
Kennedy, Anne P.
e059c1c7-d6d0-41c8-95e1-95e5273b07f8
Vassilev, Ivaylo
d76a5531-4ddc-4eb2-909b-a2a1068f05f3
Mathieson, Amy
50e06ac0-a87b-4794-bdbb-0237c7c5fbaf
Jeffries, Mark
60b8be71-faaf-448d-989d-cde3e22eff61
Blickem, Christian
cc3228ac-f56e-4dca-9aae-cbb6bfac4fb3
Brooks, Helen
0056a0c8-f97a-4215-99e1-652291fcd6eb
Sanders, Caroline
1121a9ec-e719-489a-9ffd-ae8cb6e49a78
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
Morris, Rebecca
bd538c3b-0048-4e59-a61d-54335a4aeac1
Kirk, Susan
1d9ea73e-52d1-43a6-bf55-e385d94098f2
Kennedy, Anne P.
e059c1c7-d6d0-41c8-95e1-95e5273b07f8
Vassilev, Ivaylo
d76a5531-4ddc-4eb2-909b-a2a1068f05f3
Mathieson, Amy
50e06ac0-a87b-4794-bdbb-0237c7c5fbaf
Jeffries, Mark
60b8be71-faaf-448d-989d-cde3e22eff61
Blickem, Christian
cc3228ac-f56e-4dca-9aae-cbb6bfac4fb3
Brooks, Helen
0056a0c8-f97a-4215-99e1-652291fcd6eb
Sanders, Caroline
1121a9ec-e719-489a-9ffd-ae8cb6e49a78
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7

Morris, Rebecca, Kirk, Susan, Kennedy, Anne P., Vassilev, Ivaylo, Mathieson, Amy, Jeffries, Mark, Blickem, Christian, Brooks, Helen, Sanders, Caroline and Rogers, Anne (2015) Connecting local support: a qualitative study exploring the role of voluntary organisations in long-term condition management. Chronic Illness, 11 (2), 140-155. (doi:10.1177/1742395314551098). (PMID:25199957)

Record type: Article

Abstract

OBJECTIVES:
To examine the role of community groups to support people living with long-term conditions and the organisational factors that influence this role.

METHODS:
Thirty-three semi-structured interviews were conducted with voluntary group organisers purposefully sampled in Greater Manchester from a local database of community groups. Interviews explored the organisations role in supporting people living with a long-term condition, their social networks and the origins of the groups.

RESULTS:
Respondents' construed their role in supporting individual capacity for management either explicitly (e.g. providing exercise) or implicitly (e.g. emotional support). This role was influenced by a combination of group ideology, funding and social networks. Analysis highlights the role of the non-clinical setting, the social support provided within the group, as well as organisational processes that influenced their capacity to support people living with long-term conditions.

CONCLUSION:
By examining the organisation of voluntary groups, this study highlights the way in which they may support or constrain access to an extended range of support for people with long-term conditions. This paper has implications for commissioning of services by the health service from the third sector because of the differing ideological perspectives and limited operational capacity

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More information

Accepted/In Press date: 8 August 2014
e-pub ahead of print date: 7 September 2014
Published date: 1 June 2015
Keywords: long-term conditions, self-management, voluntary groups, social networks, qualitative
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 372917
URI: http://eprints.soton.ac.uk/id/eprint/372917
ISSN: 1742-3953
PURE UUID: ecf99a70-4c1b-47c1-a04b-99632cde5009
ORCID for Anne P. Kennedy: ORCID iD orcid.org/0000-0003-4570-9104
ORCID for Ivaylo Vassilev: ORCID iD orcid.org/0000-0002-2206-8247

Catalogue record

Date deposited: 05 Jan 2015 12:06
Last modified: 15 Mar 2024 03:47

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Contributors

Author: Rebecca Morris
Author: Susan Kirk
Author: Anne P. Kennedy ORCID iD
Author: Ivaylo Vassilev ORCID iD
Author: Amy Mathieson
Author: Mark Jeffries
Author: Christian Blickem
Author: Helen Brooks
Author: Caroline Sanders
Author: Anne Rogers

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