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Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
Objective: the aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment.

Methods: a nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.

Results: key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.

Conclusions: it is feasible to systematically ‘co-create’ an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted
940-949
Foster, C.
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Calman, L.
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Grimmett, C.
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Breckons, M.
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Cotterell, P.
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Yardley, L.
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Joseph, J.
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Hughes, S.
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Jones, R.
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Leonidou, C.
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Armes, J.
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Batehup, L.
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Corner, J.
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Fenlon, D.
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Lennan, E.
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Morris, C.
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Neylon, A.
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Ream, E.
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Turner, L.
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Richardson, A.
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Foster, C.
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Calman, L.
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Grimmett, C.
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Breckons, M.
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Cotterell, P.
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Yardley, L.
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Joseph, J.
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Hughes, S.
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Jones, R.
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Leonidou, C.
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Armes, J.
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Batehup, L.
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Corner, J.
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Fenlon, D.
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Lennan, E.
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Morris, C.
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Neylon, A.
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Ream, E.
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Turner, L.
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Richardson, A.
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Foster, C., Calman, L., Grimmett, C., Breckons, M., Cotterell, P., Yardley, L., Joseph, J., Hughes, S., Jones, R., Leonidou, C., Armes, J., Batehup, L., Corner, J., Fenlon, D., Lennan, E., Morris, C., Neylon, A., Ream, E., Turner, L. and Richardson, A. (2015) Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management. Psycho-Oncology, 24 (8), 940-949. (doi:10.1002/pon.3747). (PMID:25648410)

Record type: Article

Abstract

Objective: the aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment.

Methods: a nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.

Results: key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.

Conclusions: it is feasible to systematically ‘co-create’ an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted

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Accepted/In Press date: 16 December 2014
e-pub ahead of print date: 2 February 2015
Published date: August 2015
Organisations: Faculty of Health Sciences, Psychology

Identifiers

Local EPrints ID: 374360
URI: http://eprints.soton.ac.uk/id/eprint/374360
PURE UUID: e29f1559-442a-46c7-a28f-5aa8d01c2467
ORCID for C. Foster: ORCID iD orcid.org/0000-0002-4703-8378
ORCID for L. Calman: ORCID iD orcid.org/0000-0002-9964-6017
ORCID for C. Grimmett: ORCID iD orcid.org/0000-0002-7540-7206
ORCID for L. Yardley: ORCID iD orcid.org/0000-0002-3853-883X
ORCID for S. Hughes: ORCID iD orcid.org/0000-0003-4801-8245
ORCID for A. Richardson: ORCID iD orcid.org/0000-0003-3127-5755

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Date deposited: 16 Feb 2015 09:28
Last modified: 15 Mar 2024 03:43

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Contributors

Author: C. Foster ORCID iD
Author: L. Calman ORCID iD
Author: C. Grimmett ORCID iD
Author: M. Breckons
Author: P. Cotterell
Author: L. Yardley ORCID iD
Author: J. Joseph
Author: S. Hughes ORCID iD
Author: R. Jones
Author: C. Leonidou
Author: J. Armes
Author: L. Batehup
Author: J. Corner
Author: D. Fenlon
Author: E. Lennan
Author: C. Morris
Author: A. Neylon
Author: E. Ream
Author: L. Turner
Author: A. Richardson ORCID iD

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