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Psychosocial difficulties from the perspective of persons with neuropsychiatric disorders

Psychosocial difficulties from the perspective of persons with neuropsychiatric disorders
Psychosocial difficulties from the perspective of persons with neuropsychiatric disorders
Purpose: the objective of this study is to determine whether persons with neuropsychiatric disorders experience a common set of psychosocial difficulties using qualitative data from focus groups and individual interviews.

Method: the study was performed in five European countries (Finland, Italy, Germany, Poland and Spain) using the focus groups and individual interviews with persons with nine neuropsychiatric disorders (dementia, depression, epilepsy, migraine, multiple sclerosis, Parkinson's disease, schizophrenia, stroke and substance dependence). Digitally recorded sessions were analysed using a step-by-step qualitative and quantitative methodology resulting in the compilation of a common set of psychosocial difficulties using the International Classification of Functioning, Disability and Health (ICF) as a framework.

Results: sixty-seven persons participated in the study. Most persons with neuropsychiatric disorders experience difficulties in emotional functions, sleeping, carrying out daily routine, working and interpersonal relationships in common. Sixteen out of 33 psychosocial difficulties made up the common set. This set includes mental functions, pain and issues addressing activities and participation and provides first evidence for the hypothesis of horizontal epidemiology of psychosocial difficulties in neuropsychiatric disorders.

Conclusions: this study provides information about psychosocial difficulties that should be covered in the treatment and rehabilitation of persons with neuropsychiatric disorders regardless of clinical diagnoses. Implications for Rehabilitation Emotional problems, work and sleep problems should be addressed in all the treatments of neuropsychiatric disorders regardless of their specific diagnosis, etiology and severity. Personality issues should be targeted in the treatment for neurological disorders, whereas communication skill training may also be useful for mental disorders. The effects of medication and social environment on patient's daily life should be considered in all the neuropsychiatric conditions
international classification of functioning, disability and Health, mental disorder, neuropsychiatric disorders
0963-8288
1-12
Coenen, M.
c5812919-8c45-4bfa-aed8-7f91ab994e14
Cabello, M.
cf2fe279-c6c7-431a-9ddf-6ff548d07458
Umlauf, S.
6c9cdefd-2b1c-4425-a3b0-fd423bb8bfe3
Ayuso-Mateos, J.L.
cee29a4e-4898-4f34-81d5-fcd018738d8d
Anczewska, M.
4be7e266-6e8f-44a8-ae09-a545b0fc11f3
Tourunen, J.
6779c439-93de-4f8b-a038-13fe103046a8
Leonardi, M.
2f757eb3-3959-420a-93eb-cb0856e2a20d
Cieza, A.
a0df25c5-ee2c-4580-82b3-d0a75591580e
Coenen, M.
c5812919-8c45-4bfa-aed8-7f91ab994e14
Cabello, M.
cf2fe279-c6c7-431a-9ddf-6ff548d07458
Umlauf, S.
6c9cdefd-2b1c-4425-a3b0-fd423bb8bfe3
Ayuso-Mateos, J.L.
cee29a4e-4898-4f34-81d5-fcd018738d8d
Anczewska, M.
4be7e266-6e8f-44a8-ae09-a545b0fc11f3
Tourunen, J.
6779c439-93de-4f8b-a038-13fe103046a8
Leonardi, M.
2f757eb3-3959-420a-93eb-cb0856e2a20d
Cieza, A.
a0df25c5-ee2c-4580-82b3-d0a75591580e

Coenen, M., Cabello, M., Umlauf, S., Ayuso-Mateos, J.L., Anczewska, M., Tourunen, J., Leonardi, M. and Cieza, A. (2016) Psychosocial difficulties from the perspective of persons with neuropsychiatric disorders. Disability and Rehabilitation, 1-12. (doi:10.3109/09638288.2015.1074729). (PMID:26289372)

Record type: Article

Abstract

Purpose: the objective of this study is to determine whether persons with neuropsychiatric disorders experience a common set of psychosocial difficulties using qualitative data from focus groups and individual interviews.

Method: the study was performed in five European countries (Finland, Italy, Germany, Poland and Spain) using the focus groups and individual interviews with persons with nine neuropsychiatric disorders (dementia, depression, epilepsy, migraine, multiple sclerosis, Parkinson's disease, schizophrenia, stroke and substance dependence). Digitally recorded sessions were analysed using a step-by-step qualitative and quantitative methodology resulting in the compilation of a common set of psychosocial difficulties using the International Classification of Functioning, Disability and Health (ICF) as a framework.

Results: sixty-seven persons participated in the study. Most persons with neuropsychiatric disorders experience difficulties in emotional functions, sleeping, carrying out daily routine, working and interpersonal relationships in common. Sixteen out of 33 psychosocial difficulties made up the common set. This set includes mental functions, pain and issues addressing activities and participation and provides first evidence for the hypothesis of horizontal epidemiology of psychosocial difficulties in neuropsychiatric disorders.

Conclusions: this study provides information about psychosocial difficulties that should be covered in the treatment and rehabilitation of persons with neuropsychiatric disorders regardless of clinical diagnoses. Implications for Rehabilitation Emotional problems, work and sleep problems should be addressed in all the treatments of neuropsychiatric disorders regardless of their specific diagnosis, etiology and severity. Personality issues should be targeted in the treatment for neurological disorders, whereas communication skill training may also be useful for mental disorders. The effects of medication and social environment on patient's daily life should be considered in all the neuropsychiatric conditions

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More information

Accepted/In Press date: 16 July 2015
e-pub ahead of print date: 18 August 2015
Published date: 4 June 2016
Keywords: international classification of functioning, disability and Health, mental disorder, neuropsychiatric disorders
Organisations: Psychology

Identifiers

Local EPrints ID: 381378
URI: http://eprints.soton.ac.uk/id/eprint/381378
ISSN: 0963-8288
PURE UUID: 71b4cbf7-28a5-4699-9785-1b502325da38

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Date deposited: 02 Oct 2015 12:24
Last modified: 14 Mar 2024 21:14

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Contributors

Author: M. Coenen
Author: M. Cabello
Author: S. Umlauf
Author: J.L. Ayuso-Mateos
Author: M. Anczewska
Author: J. Tourunen
Author: M. Leonardi
Author: A. Cieza

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