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Toward standardized reporting for a cohort study on functioning: The Swiss Spinal Cord Injury Cohort Study

Toward standardized reporting for a cohort study on functioning: The Swiss Spinal Cord Injury Cohort Study
Toward standardized reporting for a cohort study on functioning: The Swiss Spinal Cord Injury Cohort Study
OBJECTIVE: Functioning is an important outcome to measure in cohort studies. Clear and operational outcomes are needed to judge the quality of a cohort study. This paper outlines guiding principles for reporting functioning in cohort studies and addresses some outstanding issues.

DESIGN: Principles of how to standardize reporting of data from a cohort study on functioning, by deriving scores that are most useful for further statistical analysis and reporting, are outlined. The Swiss Spinal Cord Injury Cohort Study Community Survey serves as a case in point to provide a practical application of these principles.

METHODS AND RESULTS: Development of reporting scores must be conceptually coherent and metrically sound. The International Classification of Functioning, Disability and Health (ICF) can serve as the frame of reference for this, with its categories serving as reference units for reporting. To derive a score for further statistical analysis and reporting, items measuring a single latent trait must be invariant across groups. The Rasch measurement model is well suited to test these assumptions.

CONCLUSION: Our approach is a valuable guide for researchers and clinicians, as it fosters comparability of data, strengthens the comprehensiveness of scope, and provides invariant, interval-scaled data for further statistical analyses of functioning.
1650-1977
189-196
Prodinger, B.
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Ballert, C.S.
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Brach, M.
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Brinkhof, M.W.G.
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Cieza, A.
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Hug, K.
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Jordan, X.
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Post, M.W.M.
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Scheel-Sailer, A.
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Schubert, M.
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Tennant, A.
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Stucki, G.
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Prodinger, B.
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Ballert, C.S.
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Brach, M.
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Brinkhof, M.W.G.
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Cieza, A.
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Hug, K.
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Jordan, X.
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Post, M.W.M.
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Scheel-Sailer, A.
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Schubert, M.
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Tennant, A.
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Stucki, G.
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Prodinger, B., Ballert, C.S., Brach, M., Brinkhof, M.W.G., Cieza, A., Hug, K., Jordan, X., Post, M.W.M., Scheel-Sailer, A., Schubert, M., Tennant, A. and Stucki, G. (2016) Toward standardized reporting for a cohort study on functioning: The Swiss Spinal Cord Injury Cohort Study. Journal of Rehabilitation Medicine, 48 (2), 189-196. (doi:10.2340/16501977-2026). (PMID:26926922)

Record type: Article

Abstract

OBJECTIVE: Functioning is an important outcome to measure in cohort studies. Clear and operational outcomes are needed to judge the quality of a cohort study. This paper outlines guiding principles for reporting functioning in cohort studies and addresses some outstanding issues.

DESIGN: Principles of how to standardize reporting of data from a cohort study on functioning, by deriving scores that are most useful for further statistical analysis and reporting, are outlined. The Swiss Spinal Cord Injury Cohort Study Community Survey serves as a case in point to provide a practical application of these principles.

METHODS AND RESULTS: Development of reporting scores must be conceptually coherent and metrically sound. The International Classification of Functioning, Disability and Health (ICF) can serve as the frame of reference for this, with its categories serving as reference units for reporting. To derive a score for further statistical analysis and reporting, items measuring a single latent trait must be invariant across groups. The Rasch measurement model is well suited to test these assumptions.

CONCLUSION: Our approach is a valuable guide for researchers and clinicians, as it fosters comparability of data, strengthens the comprehensiveness of scope, and provides invariant, interval-scaled data for further statistical analyses of functioning.

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Accepted/In Press date: 20 August 2015
Published date: 1 February 2016
Organisations: Psychology

Identifiers

Local EPrints ID: 389406
URI: http://eprints.soton.ac.uk/id/eprint/389406
ISSN: 1650-1977
PURE UUID: 68debe35-c09e-404e-ad47-ef837c96c743

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Date deposited: 07 Mar 2016 12:26
Last modified: 14 Mar 2024 23:03

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Contributors

Author: B. Prodinger
Author: C.S. Ballert
Author: M. Brach
Author: M.W.G. Brinkhof
Author: A. Cieza
Author: K. Hug
Author: X. Jordan
Author: M.W.M. Post
Author: A. Scheel-Sailer
Author: M. Schubert
Author: A. Tennant
Author: G. Stucki

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