A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries
Kersten, P., McLellan, D.L., Gross-Paju, K., Grigoriadis, N., Bencivenga, R., Beneton, C., Charlier, M., Ketelaer, P. and Thompson, A.J. (2000) A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries. Clinical Rehabilitation, 14, (1), 42-49. (doi:10.1191/026921500669834306).
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Description/Abstract
Objective : To develop an international services and needs assessment instrument (SUN) for people with multiple sclerosis and their carers and to pilot this in different countries of the European Community.
Design : Interview study of people with multiple sclerosis, their carers and nominated key professionals examining the unmet needs of patients and carers.
Setting : Belgium, Estonia, Greece, Italy and the United Kingdom.
Main outcome measures : Needs assessment questionnaire.
Results : The study comprised 137 people with multiple sclerosis, 125 carers and 111 professionals. Patients reported on average 2.9 unmet needs for themselves; their carers and professionals reported on average 2.4. Needs were categorized into seven broad categories. Due to difficulties experienced
by the local researchers in distinguishing between needs and objectives a large proportion of needs had to be assigned to the ‘other’ category.
Conclusions : The SUN is a valuable and practicable tool for the identification of unmet needs for people with multiple sclerosis and their carers. Formal validation and reliability testing of the different language versions is recommended.
| Item Type: | Article |
|---|---|
| ISSNs: | 0269-2155 (print) |
| Related URLs: | |
| Subjects: | R Medicine > RZ Other systems of medicine |
| Divisions: | University Structure - Pre August 2011 > Superseded (SOHPRS) |
| Item ID: | 55334 |
| Date Deposited: | 05 Aug 2008 |
| Last Modified: | 14 Aug 2012 00:56 |
| Contributors: | Kersten, P. (Author) McLellan, D.L. (Author) Gross-Paju, K. (Author) Grigoriadis, N. (Author) Bencivenga, R. (Author) Beneton, C. (Author) Charlier, M. (Author) Ketelaer, P. (Author) Thompson, A.J. (Author) |
| Date: | 2000 |
| Status: | Published |
| Contact Email Address: | P.Kersten@soton.ac.uk |
| URI: | http://eprints.soton.ac.uk/id/eprint/55334 |
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