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A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries

A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries
A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries
Objective : To develop an international services and needs assessment instrument (SUN) for people with multiple sclerosis and their carers and to pilot this in different countries of the European Community.
Design : Interview study of people with multiple sclerosis, their carers and nominated key professionals examining the unmet needs of patients and carers.
Setting : Belgium, Estonia, Greece, Italy and the United Kingdom.
Main outcome measures : Needs assessment questionnaire.
Results : The study comprised 137 people with multiple sclerosis, 125 carers and 111 professionals. Patients reported on average 2.9 unmet needs for themselves; their carers and professionals reported on average 2.4. Needs were categorized into seven broad categories. Due to difficulties experienced by the local researchers in distinguishing between needs and objectives a large proportion of needs had to be assigned to the ‘other’ category.
Conclusions : The SUN is a valuable and practicable tool for the identification of unmet needs for people with multiple sclerosis and their carers. Formal validation and reliability testing of the different language versions is recommended.
0269-2155
42-49
Kersten, P.
b5c4e49b-d73b-46f1-bdc4-266170562b67
McLellan, D.L.
2d9b8bb6-9ea8-442e-acfb-5bb0dc8511a0
Gross-Paju, K.
94652bb9-8e67-44f1-b822-7fb7d8109392
Grigoriadis, N.
1f671448-e88a-43ba-83be-4101b4f39c85
Bencivenga, R.
d98a452d-fafe-4a2c-b5f9-ea3bcc9ba56d
Beneton, C.
bc7075ad-a81b-47ea-8647-6e87645fb87d
Charlier, M.
7889d56d-2718-4c09-a070-b8dc6895f74e
Ketelaer, P.
c03759aa-e71a-48eb-9930-242f20ef1ce2
Thompson, A.J.
6fb83517-7bcd-4159-b233-ce421dabdf47
Kersten, P.
b5c4e49b-d73b-46f1-bdc4-266170562b67
McLellan, D.L.
2d9b8bb6-9ea8-442e-acfb-5bb0dc8511a0
Gross-Paju, K.
94652bb9-8e67-44f1-b822-7fb7d8109392
Grigoriadis, N.
1f671448-e88a-43ba-83be-4101b4f39c85
Bencivenga, R.
d98a452d-fafe-4a2c-b5f9-ea3bcc9ba56d
Beneton, C.
bc7075ad-a81b-47ea-8647-6e87645fb87d
Charlier, M.
7889d56d-2718-4c09-a070-b8dc6895f74e
Ketelaer, P.
c03759aa-e71a-48eb-9930-242f20ef1ce2
Thompson, A.J.
6fb83517-7bcd-4159-b233-ce421dabdf47

Kersten, P., McLellan, D.L., Gross-Paju, K., Grigoriadis, N., Bencivenga, R., Beneton, C., Charlier, M., Ketelaer, P. and Thompson, A.J. (2000) A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries. Clinical Rehabilitation, 14 (1), 42-49. (doi:10.1191/026921500669834306).

Record type: Article

Abstract

Objective : To develop an international services and needs assessment instrument (SUN) for people with multiple sclerosis and their carers and to pilot this in different countries of the European Community.
Design : Interview study of people with multiple sclerosis, their carers and nominated key professionals examining the unmet needs of patients and carers.
Setting : Belgium, Estonia, Greece, Italy and the United Kingdom.
Main outcome measures : Needs assessment questionnaire.
Results : The study comprised 137 people with multiple sclerosis, 125 carers and 111 professionals. Patients reported on average 2.9 unmet needs for themselves; their carers and professionals reported on average 2.4. Needs were categorized into seven broad categories. Due to difficulties experienced by the local researchers in distinguishing between needs and objectives a large proportion of needs had to be assigned to the ‘other’ category.
Conclusions : The SUN is a valuable and practicable tool for the identification of unmet needs for people with multiple sclerosis and their carers. Formal validation and reliability testing of the different language versions is recommended.

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Published date: 2000

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Local EPrints ID: 55334
URI: http://eprints.soton.ac.uk/id/eprint/55334
ISSN: 0269-2155
PURE UUID: b3f0f747-9409-4d02-aca0-b0b9954cde22

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Date deposited: 05 Aug 2008
Last modified: 15 Mar 2024 10:54

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Contributors

Author: P. Kersten
Author: D.L. McLellan
Author: K. Gross-Paju
Author: N. Grigoriadis
Author: R. Bencivenga
Author: C. Beneton
Author: M. Charlier
Author: P. Ketelaer
Author: A.J. Thompson

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