Experiences of partners of people in the early stages of multiple sclerosis


Bogosian, A., Moss-Morris, R., Yardley, L. and Dennison, L. (2009) Experiences of partners of people in the early stages of multiple sclerosis. Multiple Sclerosis, 15, (7), 876-884. (doi:10.1177/1352458508100048).

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Original Publication URL: http://dx.doi.org/10.1177/1352458508100048

Description/Abstract

Background
Partners of people with multiple sclerosis are known to experience a heavy physical and psychological burden. However, little research has explored, in detail, the partners’ experience in the first years after diagnosis. The aim of this study was to explore and describe the experiences
of partners of people who are in the relatively early stages of multiple sclerosis.
Methods
Fifteen semi-structured telephone interviews were conducted to assess partners’ concerns and difficulties. Data were audio-taped, transcribed, and analysed using an inductive thematic
analysis.
Results
Key themes were being unsure of what the future might hold and feeling helpless and out of control. Furthermore, partners reported that other people could not understand and support
them, which led to a feeling of social isolation.
Conclusion
The research illustrates the disruptive impact that MS has on partners’ lives and highlights the need for support to focus on partners’ needs even in early stages of the disease.

Item Type: Article
ISSNs: 1352-4585 (print)
Related URLs:
Subjects: H Social Sciences > HQ The family. Marriage. Woman
R Medicine > RB Pathology
B Philosophy. Psychology. Religion > BF Psychology
Divisions: University Structure - Pre August 2011 > School of Psychology > Division of Human Wellbeing
ePrint ID: 66750
Date Deposited: 15 Jul 2009
Last Modified: 27 Mar 2014 18:47
Contact Email Address: a.bogosian@soton.ac.uk
URI: http://eprints.soton.ac.uk/id/eprint/66750

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