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Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility

Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility
Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility
The purpose of this study was to explore experiences of cancer in the family and motivation for predictive genetic testing among women at increased risk of developing breast and/or ovarian cancer due to their family history. Fifteen women were interviewed prior to receiving their genetic test results. A grounded theory approach was adopted to analyse the interview transcripts. The findings indicated that experiences of cancer in the family play an important role in formulating beliefs about one's own risk and motivation for predictive genetic testing. A sense of responsibility for one's own health and the need to take action either to prevent cancer or detect cancer at as early a stage as possible, as well as a feeling of responsibility towards children and other family members was apparent. The findings raise the question of whether there is any real choice available to these women and whether there is a negative impact on family dynamics.
Genetic testing for cancer, breast cancer, ovarian cancer, predisposition for cancer, cancer burden, genetic testing, responsibility
1461-7277
469-484
Foster, C.
00786ac1-bd47-4aeb-a0e2-40e058695b73
Watson, M.
168c5230-279a-4c51-9065-eefcd18191fa
Moynihan, C.
be73d33e-3235-4079-b01e-472d7a44740a
Arden-Jones, A.
07759307-f0c6-4ec2-8081-479a85061229
Eeles, R.
c7ae2359-6f49-4f42-88f8-a241570f9d4f
Foster, C.
00786ac1-bd47-4aeb-a0e2-40e058695b73
Watson, M.
168c5230-279a-4c51-9065-eefcd18191fa
Moynihan, C.
be73d33e-3235-4079-b01e-472d7a44740a
Arden-Jones, A.
07759307-f0c6-4ec2-8081-479a85061229
Eeles, R.
c7ae2359-6f49-4f42-88f8-a241570f9d4f

Foster, C., Watson, M., Moynihan, C., Arden-Jones, A. and Eeles, R. (2002) Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility. Journal of Health Psychology, 7 (4), 469-484. (doi:10.1177/1359105302007004627).

Record type: Article

Abstract

The purpose of this study was to explore experiences of cancer in the family and motivation for predictive genetic testing among women at increased risk of developing breast and/or ovarian cancer due to their family history. Fifteen women were interviewed prior to receiving their genetic test results. A grounded theory approach was adopted to analyse the interview transcripts. The findings indicated that experiences of cancer in the family play an important role in formulating beliefs about one's own risk and motivation for predictive genetic testing. A sense of responsibility for one's own health and the need to take action either to prevent cancer or detect cancer at as early a stage as possible, as well as a feeling of responsibility towards children and other family members was apparent. The findings raise the question of whether there is any real choice available to these women and whether there is a negative impact on family dynamics.

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More information

Published date: 1 July 2002
Keywords: Genetic testing for cancer, breast cancer, ovarian cancer, predisposition for cancer, cancer burden, genetic testing, responsibility
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 9679
URI: http://eprints.soton.ac.uk/id/eprint/9679
ISSN: 1461-7277
PURE UUID: ee0ffe81-3f49-46b3-946f-93018cf2512d
ORCID for C. Foster: ORCID iD orcid.org/0000-0002-4703-8378

Catalogue record

Date deposited: 06 Oct 2004
Last modified: 16 Mar 2024 03:41

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Contributors

Author: C. Foster ORCID iD
Author: M. Watson
Author: C. Moynihan
Author: A. Arden-Jones
Author: R. Eeles

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