Comment. The human fertilisation and embryology act 2008: promoting wider access to information about genetic origins?
Comment. The human fertilisation and embryology act 2008: promoting wider access to information about genetic origins?
October 2009 sees the enactment of almost the entire Human Fertilisation and Embryology (HFE) Act 2008, including the new disclosure provisions for donor-conceived individuals and gamete/embryo donors. In this commentary I outline the amended disclosure provisions and highlight a number of issues raised by these changes. At first glance, the 2008 Act indicates the facilitation of a wider disclosure of information, both non-identifying and identifying, than under the previous legislation. However, examination of its provisions illustrates that in practice this may fall short of the mark. It remains to be seen whether the discretion granted to the HFEA will be utilised in ways that deny, protect or promote further knowledge of specific donor-conceived individual's wider genetic heritage.
donor-conceived, human fertilisation and embryology act 2008, genetic, origins, identifying information, genetic ties, half-siblings, HFEA
Jones, C.
e39a554e-f70d-4f90-b0dc-efa252e7d41e
25 September 2009
Jones, C.
e39a554e-f70d-4f90-b0dc-efa252e7d41e
Jones, C.
(2009)
Comment. The human fertilisation and embryology act 2008: promoting wider access to information about genetic origins?
Bionews, (527).
Abstract
October 2009 sees the enactment of almost the entire Human Fertilisation and Embryology (HFE) Act 2008, including the new disclosure provisions for donor-conceived individuals and gamete/embryo donors. In this commentary I outline the amended disclosure provisions and highlight a number of issues raised by these changes. At first glance, the 2008 Act indicates the facilitation of a wider disclosure of information, both non-identifying and identifying, than under the previous legislation. However, examination of its provisions illustrates that in practice this may fall short of the mark. It remains to be seen whether the discretion granted to the HFEA will be utilised in ways that deny, protect or promote further knowledge of specific donor-conceived individual's wider genetic heritage.
This record has no associated files available for download.
More information
Published date: 25 September 2009
Keywords:
donor-conceived, human fertilisation and embryology act 2008, genetic, origins, identifying information, genetic ties, half-siblings, HFEA
Identifiers
Local EPrints ID: 73555
URI: http://eprints.soton.ac.uk/id/eprint/73555
PURE UUID: 20f6e679-bf23-4e46-a33d-950f695c8b77
Catalogue record
Date deposited: 09 Mar 2010
Last modified: 10 Dec 2021 16:49
Export record
Contributors
Author:
C. Jones
Download statistics
Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.
View more statistics