The University of Southampton
University of Southampton Institutional Repository

Service user involvement in cancer care: the impact on service users

Service user involvement in cancer care: the impact on service users
Service user involvement in cancer care: the impact on service users
Service user involvement is embedded in the United Kingdom?s National Health Service, but knowledge about the
impact of involvement on service users, such as the benefits and challenges of involvement, is scant. Our research addresses this gap.
We aimed to explore the personal impact of involvement on the lives of service users affected by cancer. We conducted eight focus groups with user groups supplemented
by nine face-to-face interviews with involved individuals
active at a local, regional and national level. Thematic analysis was conducted both independently and collectively.
Sixty-four participants, engaged in involvement activities in cancer services, palliative care and research,were recruited across Great Britain. We identified three main themes: (i) ?Expectations and motivations for involvement? – the desire to improve services and the need for user groups to have a clear purpose, (ii) ?Positive aspects of
involvement? – support provided by user groups and assistance to live well with cancer and (iii) ?Challenging aspects of involvement? – insensitivities and undervaluing of involvement by staff. This study identified that involvement has the capacity to produce varied and significant personal impacts for involved people. Involvement can be planned and implemented in ways that
increase these impacts and that mediates challenges for those involved. Key aspects to increase positive impact for service users include the value service providers attach to involvement activities, the centrality with which involvement is embedded in providers?activities, and the capacity of involvement to influence policy,planning, service delivery, research and ? or practice.
1369-6513
159-169
Cotterell, Philip
34ced262-73fd-4635-ba0d-82fdf5c58fa2
Harlow, Gwen
056a8c3b-4525-48db-9e43-611c14769edd
Morris, Carolyn
6ca4b57c-654d-47b8-8da6-ebdce24606d5
Beresford, Peter
7ae93a01-5ae9-4987-b2dc-6500724df2f0
Hanley, Bec
b358c4dc-6bdd-4ed1-b3eb-78d3251dda26
Sargeant, Anita
3e160fe1-9dee-418d-b46b-9caa4695c4ec
Sitzia, John
7aa099da-5f90-4e28-878d-c3041d6b33ca
Staley, Kristina
8e2581e2-e095-4576-a5e8-bea7f543b56f
Cotterell, Philip
34ced262-73fd-4635-ba0d-82fdf5c58fa2
Harlow, Gwen
056a8c3b-4525-48db-9e43-611c14769edd
Morris, Carolyn
6ca4b57c-654d-47b8-8da6-ebdce24606d5
Beresford, Peter
7ae93a01-5ae9-4987-b2dc-6500724df2f0
Hanley, Bec
b358c4dc-6bdd-4ed1-b3eb-78d3251dda26
Sargeant, Anita
3e160fe1-9dee-418d-b46b-9caa4695c4ec
Sitzia, John
7aa099da-5f90-4e28-878d-c3041d6b33ca
Staley, Kristina
8e2581e2-e095-4576-a5e8-bea7f543b56f

Cotterell, Philip, Harlow, Gwen, Morris, Carolyn, Beresford, Peter, Hanley, Bec, Sargeant, Anita, Sitzia, John and Staley, Kristina (2011) Service user involvement in cancer care: the impact on service users. Health Expectations, 14 (2), 159-169. (doi:10.1111/j.1369-7625.2010.00627.x).

Record type: Article

Abstract

Service user involvement is embedded in the United Kingdom?s National Health Service, but knowledge about the
impact of involvement on service users, such as the benefits and challenges of involvement, is scant. Our research addresses this gap.
We aimed to explore the personal impact of involvement on the lives of service users affected by cancer. We conducted eight focus groups with user groups supplemented
by nine face-to-face interviews with involved individuals
active at a local, regional and national level. Thematic analysis was conducted both independently and collectively.
Sixty-four participants, engaged in involvement activities in cancer services, palliative care and research,were recruited across Great Britain. We identified three main themes: (i) ?Expectations and motivations for involvement? – the desire to improve services and the need for user groups to have a clear purpose, (ii) ?Positive aspects of
involvement? – support provided by user groups and assistance to live well with cancer and (iii) ?Challenging aspects of involvement? – insensitivities and undervaluing of involvement by staff. This study identified that involvement has the capacity to produce varied and significant personal impacts for involved people. Involvement can be planned and implemented in ways that
increase these impacts and that mediates challenges for those involved. Key aspects to increase positive impact for service users include the value service providers attach to involvement activities, the centrality with which involvement is embedded in providers?activities, and the capacity of involvement to influence policy,planning, service delivery, research and ? or practice.

This record has no associated files available for download.

More information

Published date: 2011

Identifiers

Local EPrints ID: 154237
URI: http://eprints.soton.ac.uk/id/eprint/154237
ISSN: 1369-6513
PURE UUID: a4a9a86a-83d9-4d01-aa53-356cf1c86ced

Catalogue record

Date deposited: 24 May 2010 15:14
Last modified: 14 Mar 2024 01:34

Export record

Altmetrics

Contributors

Author: Philip Cotterell
Author: Gwen Harlow
Author: Carolyn Morris
Author: Peter Beresford
Author: Bec Hanley
Author: Anita Sargeant
Author: John Sitzia
Author: Kristina Staley

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×