Experiences of hospital care reported by bereaved relatives of patients after a stroke: a retrospective survey using the VOICES questionnaire
Experiences of hospital care reported by bereaved relatives of patients after a stroke: a retrospective survey using the VOICES questionnaire
Aim. This paper is a report of a study conducted to explore the determinants of satisfaction with health and social care services in the last 3 months and 3 days of life as reported by bereaved relatives of those who died from a stroke in an institutional setting.
Background. There is limited research about how best to meet the needs of those who die from stroke. A thorough understanding of the determinants of satisfaction with end of life care is crucial for effective service provision to increase awareness of the needs of dying patients.
Methods. During a six-month period in 2003, a population-based survey of bereaved relatives of patients after stroke was conducted using a stroke-specific version of the Views of Informal Carers Evaluation of Services postal questionnaire (183 informants, response rate 37%). The sub-sample included those informants who reported that the deceased person had died in an institutional setting (91%, n = 165). The analysis was divided into two phases: univariate (Pearson chi-square test) and multivariate phase (logistic regression).
Results. Logistic regressions showed that discussing any worries about the treatment of the deceased person and feeling that the doctors and nurses knew enough about their condition were predictors of satisfaction with doctors and nurses in the last 3 months of life. Meeting the personal care needs of the deceased person, being involved in decisions and feeling that the deceased person died in the right place were predictors of satisfaction with care in the last 3 days of life.
Conclusion. End of life care needs to address the individual needs of patients who die from stroke and those close to them. This study shows that individualised end of life care increases satisfaction and, although the data reported in this paper reflect care in 2003, there is no more recent evidence that contradicts this important overall finding.
bereaved relatives, experiences, hospital care, nursing, patients, stroke, survey, voices questionnaire
2161-2174
Young, Amanda J.
6bb7aa9c-776b-4bdd-be4e-cf67abd05652
Rogers, Angie
4fad378d-4cf3-4f43-bbd0-571452b242cd
Dent, Louise
8b827763-d839-4b4b-bbf2-358a84110294
Addington-Hall, Julia M.
87560cc4-7562-4f9b-b908-81f3b603fdd8
October 2009
Young, Amanda J.
6bb7aa9c-776b-4bdd-be4e-cf67abd05652
Rogers, Angie
4fad378d-4cf3-4f43-bbd0-571452b242cd
Dent, Louise
8b827763-d839-4b4b-bbf2-358a84110294
Addington-Hall, Julia M.
87560cc4-7562-4f9b-b908-81f3b603fdd8
Young, Amanda J., Rogers, Angie, Dent, Louise and Addington-Hall, Julia M.
(2009)
Experiences of hospital care reported by bereaved relatives of patients after a stroke: a retrospective survey using the VOICES questionnaire.
Journal of Advanced Nursing, 65 (10), .
(doi:10.1111/j.1365-2648.2009.05081.x).
(PMID:20568321)
Abstract
Aim. This paper is a report of a study conducted to explore the determinants of satisfaction with health and social care services in the last 3 months and 3 days of life as reported by bereaved relatives of those who died from a stroke in an institutional setting.
Background. There is limited research about how best to meet the needs of those who die from stroke. A thorough understanding of the determinants of satisfaction with end of life care is crucial for effective service provision to increase awareness of the needs of dying patients.
Methods. During a six-month period in 2003, a population-based survey of bereaved relatives of patients after stroke was conducted using a stroke-specific version of the Views of Informal Carers Evaluation of Services postal questionnaire (183 informants, response rate 37%). The sub-sample included those informants who reported that the deceased person had died in an institutional setting (91%, n = 165). The analysis was divided into two phases: univariate (Pearson chi-square test) and multivariate phase (logistic regression).
Results. Logistic regressions showed that discussing any worries about the treatment of the deceased person and feeling that the doctors and nurses knew enough about their condition were predictors of satisfaction with doctors and nurses in the last 3 months of life. Meeting the personal care needs of the deceased person, being involved in decisions and feeling that the deceased person died in the right place were predictors of satisfaction with care in the last 3 days of life.
Conclusion. End of life care needs to address the individual needs of patients who die from stroke and those close to them. This study shows that individualised end of life care increases satisfaction and, although the data reported in this paper reflect care in 2003, there is no more recent evidence that contradicts this important overall finding.
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Published date: October 2009
Keywords:
bereaved relatives, experiences, hospital care, nursing, patients, stroke, survey, voices questionnaire
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Local EPrints ID: 157581
URI: http://eprints.soton.ac.uk/id/eprint/157581
ISSN: 0309-2402
PURE UUID: f6ba93c5-ab82-4088-9d40-954079f8962e
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Date deposited: 09 Jun 2010 08:34
Last modified: 14 Mar 2024 02:52
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Author:
Angie Rogers
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