A qualitative enquiry into lay knowledge about the links between breast cancer and genetics

Pogson, Delia (2010) A qualitative enquiry into lay knowledge about the links between breast cancer and genetics. Population Health Day, Southampton, United Kingdom. 28 Jun 2010.

Abstract

Title: A qualitative enquiry into lay knowledge about the links between breast cancer and genetics.

Aim: This study aims to gain an understanding of lay people’s knowledge and understanding of genetics regarding hereditary breast cancer.

Background: The Cancer Reform Strategy (DH 2007) clearly indicated the need for increased public awareness and improvements in the early detection of cancer. Genetic causes of cancer are increasingly being identified and broadcasted. It is estimated that of the approximately 44,000 women and 300 men diagnosed annually with breast cancer in the UK, 5-10% of these are caused by genetically inherited mutations (Cancer Research UK 2009).

Genetics is a complex subject and many individuals have difficulties in making sense of the subject in relation to their own health. The literature is limited regarding the knowledge and understanding of genetics in the general population, what individuals want to know, and how it should be presented.

Method: Using phenomenological methods, eight face-to-face semi-structured interviews were conducted. The key question directing the data collection was how do individuals make sense of genetic concepts? Interpretative approaches to data analysis assisted in the formulation of themes.

Results & Conclusion: Preliminary findings suggest there are variations in the level of understanding across the general population. Particular populations, such as low socio-economic groups have the greatest difficulties in understanding these genetic concepts. These insights will assist in tailoring population focused health education campaigns.

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