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Patient experience of dialysis refusal or withdrawal-a review of the literature

Patient experience of dialysis refusal or withdrawal-a review of the literature
Patient experience of dialysis refusal or withdrawal-a review of the literature
Aim: the aim of this literature review was to advance understanding of dialysis refusal and withdrawal in relation to the experiences of patients and carers and to explore the trajectory to death of those abating dialysis.

Method: databases searched included CINAHL, Medline, PsycINFO, British Nursing Index, International Bibliography of the Social Sciences, ASSIA and Cancerlit. Forty-four quantitative papers and two qualitative papers were identified.

Findings: the patient and carer experience is rarely explored in the literature but issues related to ‘Making decisions to withhold/forego or withdraw treatment’, ‘Length of survival without dialysis’, Prevalence of symptoms in end-stage renal disease’, ‘The utilisation of Advance Directives’ and ‘The impact on families’ throw some light on the phenomena of dialysis refusal and withdrawal.

Conclusions: little is known about those patients who withdraw from or decide not to commence dialysis. Empirical studies related to those who opt not to embark on dialysis are limited to four worldwide. There is an urgent need for further research to determine the experiences and needs of this population and a more patient-centred approach is required, consistent with modern palliative medicine
abatement, decision, end of life, palliative care, supportive care, withdrawal
1755-6678
94-100
Noble, Helen
65485329-4bed-4f9b-96c1-26e7f91e531f
Meyer, Julienne
c4fc2052-b132-4749-9df3-41f012d7e90f
Bridges, Jackie
8352b54c-c34f-430b-b9fb-107a1f2f4e28
Kelly, Daniel
10b0a4eb-fd29-4110-81da-92700153149e
Johnson, Barbara
4fb4f990-a256-402d-8ca2-53182692dc0a
Noble, Helen
65485329-4bed-4f9b-96c1-26e7f91e531f
Meyer, Julienne
c4fc2052-b132-4749-9df3-41f012d7e90f
Bridges, Jackie
8352b54c-c34f-430b-b9fb-107a1f2f4e28
Kelly, Daniel
10b0a4eb-fd29-4110-81da-92700153149e
Johnson, Barbara
4fb4f990-a256-402d-8ca2-53182692dc0a

Noble, Helen, Meyer, Julienne, Bridges, Jackie, Kelly, Daniel and Johnson, Barbara (2008) Patient experience of dialysis refusal or withdrawal-a review of the literature. Journal of Renal Care, 34 (2), 94-100. (doi:10.1111/j.1755-6686.2008.00017.x). (PMID:18498574)

Record type: Article

Abstract

Aim: the aim of this literature review was to advance understanding of dialysis refusal and withdrawal in relation to the experiences of patients and carers and to explore the trajectory to death of those abating dialysis.

Method: databases searched included CINAHL, Medline, PsycINFO, British Nursing Index, International Bibliography of the Social Sciences, ASSIA and Cancerlit. Forty-four quantitative papers and two qualitative papers were identified.

Findings: the patient and carer experience is rarely explored in the literature but issues related to ‘Making decisions to withhold/forego or withdraw treatment’, ‘Length of survival without dialysis’, Prevalence of symptoms in end-stage renal disease’, ‘The utilisation of Advance Directives’ and ‘The impact on families’ throw some light on the phenomena of dialysis refusal and withdrawal.

Conclusions: little is known about those patients who withdraw from or decide not to commence dialysis. Empirical studies related to those who opt not to embark on dialysis are limited to four worldwide. There is an urgent need for further research to determine the experiences and needs of this population and a more patient-centred approach is required, consistent with modern palliative medicine

Full text not available from this repository.

More information

Published date: June 2008
Keywords: abatement, decision, end of life, palliative care, supportive care, withdrawal

Identifiers

Local EPrints ID: 175659
URI: https://eprints.soton.ac.uk/id/eprint/175659
ISSN: 1755-6678
PURE UUID: f4e9f77d-b001-4196-be47-37ead9352113

Catalogue record

Date deposited: 25 Feb 2011 11:38
Last modified: 16 Jul 2019 23:46

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