The University of Southampton
University of Southampton Institutional Repository

Caring for independent lives: geographies of caring for young adults with intellectual disabilities

Caring for independent lives: geographies of caring for young adults with intellectual disabilities
Caring for independent lives: geographies of caring for young adults with intellectual disabilities
This paper engages with the emerging disciplinary clash between ‘care’ and ‘independence’ within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are ‘caught-in-the-middle’ between their ‘duty’ to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.
carer, disability geography, caregiving, intellectual disability, ireland, independent living, family
0277-9536
834-843
Power, Andrew
b3a1ee09-e381-413a-88ac-7cb3e13b3acc
Power, Andrew
b3a1ee09-e381-413a-88ac-7cb3e13b3acc

Power, Andrew (2008) Caring for independent lives: geographies of caring for young adults with intellectual disabilities. [in special issue: Ethics and the ethnography of medical research in Africa] Social Science & Medicine, 67 (5), 834-843. (doi:10.1016/j.socscimed.2008.05.023). (PMID:18573581)

Record type: Article

Abstract

This paper engages with the emerging disciplinary clash between ‘care’ and ‘independence’ within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are ‘caught-in-the-middle’ between their ‘duty’ to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.

This record has no associated files available for download.

More information

e-pub ahead of print date: 21 June 2008
Published date: September 2008
Keywords: carer, disability geography, caregiving, intellectual disability, ireland, independent living, family
Organisations: Geography, PHEW – C (Care)

Identifiers

Local EPrints ID: 178399
URI: http://eprints.soton.ac.uk/id/eprint/178399
ISSN: 0277-9536
PURE UUID: a8a9cebf-3534-4f23-8633-c8961de15ca8
ORCID for Andrew Power: ORCID iD orcid.org/0000-0002-3887-1050

Catalogue record

Date deposited: 24 Mar 2011 11:53
Last modified: 14 Mar 2024 02:57

Export record

Altmetrics

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×