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The impact of involvement on service users

The impact of involvement on service users
The impact of involvement on service users
This presentation will explore key issues concerned with the different personal impacts that involvement in services or research can produce for service users.

Whilst service user involvement has been advancing in the area of cancer and palliative care services and research very little direct attention has been paid to the effect involvement has on involved service users.

We have been working with service user groups and individuals in cancer care, palliative care and cancer research using group discussions with service user groups and individual interviews to explore the personal impacts of involvement. The study was funded by Macmillan Cancer Support. Two service user researchers were key members of the research team actively involved in all stages of the study.

We present new findings that include:

•The motivations, expectations and barriers regarding involvement
•The learning, emotional and intellectual, that comes from being involved
•The personal impacts, positive and negative, that involvement can produce
Reflecting on all our findings, we expect learning and discussion to focus on:

•The wide variety of personal impacts that can arise for service users
•The implications of these impacts for service users themselves, service user groups and organisations interested in engaging with service users and their groups
Cotterell, Phil
34ced262-73fd-4635-ba0d-82fdf5c58fa2
Harlow, Gwen
056a8c3b-4525-48db-9e43-611c14769edd
Morris, Carolyn
6ca4b57c-654d-47b8-8da6-ebdce24606d5
Cotterell, Phil
34ced262-73fd-4635-ba0d-82fdf5c58fa2
Harlow, Gwen
056a8c3b-4525-48db-9e43-611c14769edd
Morris, Carolyn
6ca4b57c-654d-47b8-8da6-ebdce24606d5

Cotterell, Phil, Harlow, Gwen and Morris, Carolyn (2008) The impact of involvement on service users. INVOLVE 6th national conference. 11 - 12 Nov 2008.

Record type: Conference or Workshop Item (Other)

Abstract

This presentation will explore key issues concerned with the different personal impacts that involvement in services or research can produce for service users.

Whilst service user involvement has been advancing in the area of cancer and palliative care services and research very little direct attention has been paid to the effect involvement has on involved service users.

We have been working with service user groups and individuals in cancer care, palliative care and cancer research using group discussions with service user groups and individual interviews to explore the personal impacts of involvement. The study was funded by Macmillan Cancer Support. Two service user researchers were key members of the research team actively involved in all stages of the study.

We present new findings that include:

•The motivations, expectations and barriers regarding involvement
•The learning, emotional and intellectual, that comes from being involved
•The personal impacts, positive and negative, that involvement can produce
Reflecting on all our findings, we expect learning and discussion to focus on:

•The wide variety of personal impacts that can arise for service users
•The implications of these impacts for service users themselves, service user groups and organisations interested in engaging with service users and their groups

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More information

Published date: 2008
Venue - Dates: INVOLVE 6th national conference, 2008-11-11 - 2008-11-12

Identifiers

Local EPrints ID: 183973
URI: http://eprints.soton.ac.uk/id/eprint/183973
PURE UUID: 271d6e84-d0bf-4e0b-b247-65e482078bbd

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Date deposited: 04 May 2011 10:50
Last modified: 22 Jul 2022 17:40

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Contributors

Author: Phil Cotterell
Author: Gwen Harlow
Author: Carolyn Morris

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