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Evaluation of a collaborative model for consumer research panels in cancer research networks

Evaluation of a collaborative model for consumer research panels in cancer research networks
Evaluation of a collaborative model for consumer research panels in cancer research networks
This report presents the findings of an independent evaluation of a pilot scheme to set up a Consumer Research Panel in each of three cancer research networks in England. ‘Consumer Research Panels’ (CRPs) are groups of consumers – meaning cancer patients, carers, and other people affected by cancer – who work with cancer researchers in a variety of ways with the intention of improving the relevance, quality or conduct of a research study. Examples of ‘consumer involvement’ activities in cancer research in the UK have appeared in the literature since the mid 1980s, and include ad-hoc involvement in discrete projects and involvement in the work of national cancer research bodies, such as the NCRI. Consumer involvement in the context of cancer research networks appears scarce however, with a pioneering CRP in the North Trent region being the only well-documented initiative prior this current pilot scheme.
Macmillan Cancer Support
Brown, Viviene
54ca0f3f-008f-4c5e-8e75-9a2cc2976ff6
Cotterell, Phil
34ced262-73fd-4635-ba0d-82fdf5c58fa2
Sitzia, John
7aa099da-5f90-4e28-878d-c3041d6b33ca
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Kelley, Kate
4463a15a-e6a0-4d7c-97c0-41190fea25ba
Willers, Rosemary
62a9ff1d-dbf5-4ee7-9a16-804180723433
Brown, Viviene
54ca0f3f-008f-4c5e-8e75-9a2cc2976ff6
Cotterell, Phil
34ced262-73fd-4635-ba0d-82fdf5c58fa2
Sitzia, John
7aa099da-5f90-4e28-878d-c3041d6b33ca
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Kelley, Kate
4463a15a-e6a0-4d7c-97c0-41190fea25ba
Willers, Rosemary
62a9ff1d-dbf5-4ee7-9a16-804180723433

Brown, Viviene, Cotterell, Phil, Sitzia, John, Richardson, Alison, Kelley, Kate and Willers, Rosemary (2006) Evaluation of a collaborative model for consumer research panels in cancer research networks Macmillan Cancer Support 181pp.

Record type: Monograph (Project Report)

Abstract

This report presents the findings of an independent evaluation of a pilot scheme to set up a Consumer Research Panel in each of three cancer research networks in England. ‘Consumer Research Panels’ (CRPs) are groups of consumers – meaning cancer patients, carers, and other people affected by cancer – who work with cancer researchers in a variety of ways with the intention of improving the relevance, quality or conduct of a research study. Examples of ‘consumer involvement’ activities in cancer research in the UK have appeared in the literature since the mid 1980s, and include ad-hoc involvement in discrete projects and involvement in the work of national cancer research bodies, such as the NCRI. Consumer involvement in the context of cancer research networks appears scarce however, with a pioneering CRP in the North Trent region being the only well-documented initiative prior this current pilot scheme.

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More information

Published date: November 2006

Identifiers

Local EPrints ID: 184021
URI: https://eprints.soton.ac.uk/id/eprint/184021
PURE UUID: 3503ea2a-5833-4c19-a3ef-fdbf90343ba9
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755

Catalogue record

Date deposited: 05 May 2011 12:35
Last modified: 19 Oct 2018 00:31

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