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Evaluation of the experiences of family members whose deceased relative donated tissues at the NHSBT dedicated donation facility in Speke, Liverpool

Long-Sutehall, Tracy, Winstanley, Emma, Clarkson, Anthony and Sque, Magi (2011) Evaluation of the experiences of family members whose deceased relative donated tissues at the NHSBT dedicated donation facility in Speke, Liverpool Cell and Tissue Banking (doi:10.1007/s10561-011-9269-x).

Record type: Article

Abstract

Donation of human tissue for transplant and research has historically been facilitated within the hospital mortuary. In 2006 NHSBT Tissue Services opened the Dedicated Donation Facility [DDF], the first facility in the UK dedicated to the donation of tissues under strictly controlled conditions. Nine family members who had agreed and experienced the transfer of their deceased relative to the DDF for tissue donation participated in a service evaluation applying qualitative data collection methods and framework analysis. The evaluation aimed to: understand the decision-making process of family members who agreed to their deceased relative being moved to the DDR for tissue donation; identify any concerns that family members had; gather the views of family members regarding the ‘service’ provided to them by NHSBT Tissue Services. Family members were unaware of the possibility of tissue donation. The process of reasoning behind both agreeing to tissue donation and movement of the deceased to the DDF by family members was fundamentally, ‘the benefit to others’ that tissue donation would bring, and fulfilling the wishes of the deceased [when known]. Family decision making was facilitated by: (i) a positive rapport with the requester, (ii) satisfaction with the information provided to the family about what would happen, and (iii) trust in that what was being said would happen. Family members were satisfied with the service provided to them by Tissue Services and confident in agreeing to the transfer of their deceased relative to the dedicated facility for tissue donation

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More information

Published date: August 2011
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 195947
URI: http://eprints.soton.ac.uk/id/eprint/195947
ISSN: 1389-9333
PURE UUID: c74b807f-4f68-41b5-87f3-733801178ca2
ORCID for Tracy Long-Sutehall: ORCID iD orcid.org/0000-0002-6661-9215

Catalogue record

Date deposited: 31 Aug 2011 11:01
Last modified: 18 Jul 2017 11:24

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Contributors

Author: Emma Winstanley
Author: Anthony Clarkson
Author: Magi Sque

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