Addington-Hall, J. and Kalra, L.
Who should measure Quality of Life?
BMJ, 322, .
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Some patients cannot complete quality of life measures because they have cognitive impairments, communication deficits, are in severe distress, or because the measures are too burdensome
It is precisely these patients for whom information on quality of life is most needed to inform decision making
Proxiesboth healthcare professionals and lay caregiverscan provide useful information particularly on the more concrete, observable aspects of quality of life
Scores from proxies may be influenced by their own feelings about and experiences of caring for the patient
When a clinician's assessment of quality of life is at odds with that of the patient, the patient should have the final word
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