The University of Southampton
University of Southampton Institutional Repository

Needs of carers of severely disabled people: are they identified and met adequately?

Kersten, Paula, McLellan, Lindsay, George, Steve, Mullee, Mark A. and Smith, Jenifer A.E. (2001) Needs of carers of severely disabled people: are they identified and met adequately? Health and Social Care in the Community, 9, (4), pp. 235-243. (doi:10.1046/j.1365-2524.2001.00297.x).

Record type: Article

Abstract

Objective:

To examine the unmet needs of informal carers of community dwelling disabled people and to compare their perspectives to those of disabled people and nominated professionals. It was hypothesised that a poor recognition of carers' needs could have implications for carers' well- being and thus their ability to maintain their caring role. Need was defined as a service or a resource that would confer a health or rehabilitation gain.

Design:

Face to face interviews with carers and disabled participants, telephone interviews with professionals (Southern England). Disabled participants had been selected randomly from two disability registers.

Main outcome measures:

The Southampton Needs Assessment Questionnaire (carers version), SF-36 (carers' health status).

Results:

Carers experienced similar health status to people in the general population. The most frequently carer-reported unmet needs were for short breaks, domestic help and respite care. Carers who had reported unmet need for short breaks had significantly poorer levels of mental health and vitality (SF-36) than carers who had not reported this. Similar numbers of unmet carers' needs were reported by disabled participants, professionals and carers themselves. In terms of type of unmet needs, poor concordance between carers and disabled participants occurred in 52% of cases: carers reported more unmet needs than disabled participants for short breaks and domestic help. Poor concordance scores between carers and professionals occurred in 59% of cases: carers reported more unmet needs for short breaks than professionals and professionals reported more unmet needs for formal respite care.

Conclusion:

In line with recent legislation, carers' needs must be independently addressed and services, especially for flexible community support such as short break services, must be developed specifically to meet the needs of carers. Further research is warranted to evaluate whether recent legislation for carers has any effect on carers' well-being and ability to cope with their caring role.

Full text not available from this repository.

More information

Published date: July 2001
Keywords: carers, disabled people, needs, rehabilitation, southampton needs assessment questionnaire

Identifiers

Local EPrints ID: 24360
URI: http://eprints.soton.ac.uk/id/eprint/24360
ISSN: 0966-0410
PURE UUID: ff4aa242-c231-4da3-ba45-dab53f02ef73

Catalogue record

Date deposited: 30 Mar 2006
Last modified: 17 Jul 2017 16:13

Export record

Altmetrics

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×