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Differences in understanding of specialist palliative care amongst service providers and commissioners in South London

Differences in understanding of specialist palliative care amongst service providers and commissioners in South London
Differences in understanding of specialist palliative care amongst service providers and commissioners in South London
This paper describes a study that sought to identify service providers' and commissioners' understanding of specialist palliative care within the context of changing service provision in one area of South London. Using a formative evaluation framework, we examined the views of 44 providers and commissioners from statutory and voluntary health and social care services about their understanding of specialist palliative care services and, in particular, the remit of current service provision delivered by a Marie Curie Centre. Face-to-face audiotaped semi-structured interviews were conducted. A qualitative thematic analysis highlighted a number of issues including a lack of consensus about definitions of palliative care, ambivalence about referral procedures, and a lack of role clarity between specialist and generalist palliative care providers. The study took place within the real world context of changing services and economic pressures. This raises methodological issues about how services are evaluated and what terminology is used to describe end-of-life care. The study findings confirm that confusion about terminology and referral criteria remain major issues for clinical workers and organizations seeking to access services.
home care services, organisation, palliative care, terminal care
0269-2163
395- 402
Payne, S.
72967c33-d094-4fbe-9ac5-1d60087fb0e7
Sheldon, F.
b7ee98bc-16a6-433d-b07a-e9540630aecb
Jarrett, N.
2127f54c-9a95-4b04-a7f4-c1da8b21b378
Large, S.
825848f6-0f2b-4960-8ecf-ff6a642007ae
Smith, P.
11f678ab-4aee-426a-aedd-19719d80bbbc
Davis, C.L.
8809766a-90cc-4b34-8e76-8f387a79ed89
Turner, P.
813ab1ac-8a2f-4d34-a96e-22ebd8e7d40c
George, S.
bdfc752b-f67e-4490-8dc0-99bfaeb046ca
Payne, S.
72967c33-d094-4fbe-9ac5-1d60087fb0e7
Sheldon, F.
b7ee98bc-16a6-433d-b07a-e9540630aecb
Jarrett, N.
2127f54c-9a95-4b04-a7f4-c1da8b21b378
Large, S.
825848f6-0f2b-4960-8ecf-ff6a642007ae
Smith, P.
11f678ab-4aee-426a-aedd-19719d80bbbc
Davis, C.L.
8809766a-90cc-4b34-8e76-8f387a79ed89
Turner, P.
813ab1ac-8a2f-4d34-a96e-22ebd8e7d40c
George, S.
bdfc752b-f67e-4490-8dc0-99bfaeb046ca

Payne, S., Sheldon, F., Jarrett, N., Large, S., Smith, P., Davis, C.L., Turner, P. and George, S. (2002) Differences in understanding of specialist palliative care amongst service providers and commissioners in South London. Palliative Medicine, 16 (5), 395- 402. (doi:10.1191/0269216302pm572oa). (PMID:12380657)

Record type: Article

Abstract

This paper describes a study that sought to identify service providers' and commissioners' understanding of specialist palliative care within the context of changing service provision in one area of South London. Using a formative evaluation framework, we examined the views of 44 providers and commissioners from statutory and voluntary health and social care services about their understanding of specialist palliative care services and, in particular, the remit of current service provision delivered by a Marie Curie Centre. Face-to-face audiotaped semi-structured interviews were conducted. A qualitative thematic analysis highlighted a number of issues including a lack of consensus about definitions of palliative care, ambivalence about referral procedures, and a lack of role clarity between specialist and generalist palliative care providers. The study took place within the real world context of changing services and economic pressures. This raises methodological issues about how services are evaluated and what terminology is used to describe end-of-life care. The study findings confirm that confusion about terminology and referral criteria remain major issues for clinical workers and organizations seeking to access services.

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More information

Published date: July 2002
Keywords: home care services, organisation, palliative care, terminal care

Identifiers

Local EPrints ID: 24463
URI: http://eprints.soton.ac.uk/id/eprint/24463
ISSN: 0269-2163
PURE UUID: 253d9557-f195-40a1-803d-9fe30ed71198
ORCID for N. Jarrett: ORCID iD orcid.org/0000-0003-2513-8113

Catalogue record

Date deposited: 31 Mar 2006
Last modified: 08 Jan 2022 01:01

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Contributors

Author: S. Payne
Author: F. Sheldon
Author: N. Jarrett ORCID iD
Author: S. Large
Author: P. Smith
Author: C.L. Davis
Author: P. Turner
Author: S. George

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