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Review of home paediatric parenteral nutrition in the UK

Record type: Article

Home parenteral nutrition (HPN) is an expensive technological development which has given life to children with chronic intestinal failure. However, HPN is a complex therapy which carries life-threatening risks. The British Artificial Nutrition Survey (BANS), launched in 1996, monitors and audits HPN in the UK. It is the largest ongoing survey in the world, reviewing patients receiving enteral and parenteral nutrition. Data collated from health professionals between June 1996 and September 1999 identified 81 children who were registered. The commonest diagnosis for starting HPN was short-bowel syndrome, with 41% of the children being under the age of 1 year. Readmission rates of children to hospital were reported as less than 2%, suggesting that most of the burden of care is placed on families. Questionnaire data received from families (response rate 38%) identified that sleep disturbance was common. Families also experience a deterioration in their family life. This relates to poor social life activities and overall quality of life after the child had started HPN. Further qualitative research data are required to review the ongoing psychosocial issues for families.

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Citation

Holden, Christine E., Elia, Marinos, Russell, Christine, Shaffer, John, Micklewright, Ann, Wood, Susanne, Wheatley, Caroline, Meadows, Nigel, Thomas, Adrian, Stratton, Rebecca and Scott, Douglas (2001) Review of home paediatric parenteral nutrition in the UK British Journal of Nursing, 10, (12), pp. 782-788.

More information

Published date: 2001

Identifiers

Local EPrints ID: 25613
URI: http://eprints.soton.ac.uk/id/eprint/25613
ISSN: 0966-0461
PURE UUID: 451c5693-dbef-4fc4-89cb-96d897d73ce9

Catalogue record

Date deposited: 07 Apr 2006
Last modified: 17 Jul 2017 16:10

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Contributors

Author: Christine E. Holden
Author: Marinos Elia
Author: Christine Russell
Author: John Shaffer
Author: Ann Micklewright
Author: Susanne Wood
Author: Caroline Wheatley
Author: Nigel Meadows
Author: Adrian Thomas
Author: Rebecca Stratton
Author: Douglas Scott

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