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The opinions, expectations and experiences of women with a family history of breast cancer who consult their GP and are referred to secondary care

Andermann, Anne A.J., Watson, Eila K., Lucassen, Anneke M. and Austoker, Joan (2001) The opinions, expectations and experiences of women with a family history of breast cancer who consult their GP and are referred to secondary care Community Genetics, 4, (4), pp. 239-243. (doi:10.1159/000064199).

Record type: Article

Abstract

Objectives: The purpose of this work was to explore the views, expectations and experiences of the increasing number of women with a family history of breast cancer who present to their GP and are referred to secondary care.
Methods: A prospective descriptive study was carried out with 193 women referred by their GP regarding a family history of breast cancer to a genetics clinic or breast clinic in Oxfordshire and Northamptonshire over a one-year period.
Results: Women who presented to primary care about a family history of breast cancer wanted their GP to provide them with information (90%) and to discuss their risks of developing breast cancer (87%). Women often had unrealistic expectations of what they might expect from a referral to secondary care, especially with regards to being offered genetic testing. Within 1 month of attending the secondary care appointment, 11% of women had returned to see their GP regarding their family history and what had happened at the specialist clinic.
Conclusions: Women want information and the opportunity to discuss their breast cancer family history concerns in a primary care setting. For women who are referred, information provision in primary care is important to ensure realistic expectations of the secondary care visit and to provide ongoing reassurance and support throughout the often lengthy referral process. For women who are not referred, information provision in primary care is even more important, as this may be their only source of information and advice.

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More information

Published date: 2001
Keywords: breat neoplasms, family history, primary care, genetics, patient information, risk communication, consumer views

Identifiers

Local EPrints ID: 26191
URI: http://eprints.soton.ac.uk/id/eprint/26191
PURE UUID: e7974db4-a50f-4001-b605-42a60c6f1369

Catalogue record

Date deposited: 24 Apr 2006
Last modified: 17 Jul 2017 16:08

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Contributors

Author: Anne A.J. Andermann
Author: Eila K. Watson
Author: Anneke M. Lucassen
Author: Joan Austoker

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