Working towards ethical management of genetic testing
Working towards ethical management of genetic testing
Developments in genetic testing and increased public awareness of inherited disease have led to increasing interest in and concern about the ethical issues raised by clinical genetics. We looked at methods for ethical management of genetic testing, and investigated the advantages and limitations of use of ethical guidelines in clinical genetics. We believe that a key element in successful management of genetic testing in addition to guidelines will be availability of ethics training and support for geneticists, nurses, and counsellors. Clinical ethics committees and clinical ethicists can act as a useful focus for such training and advice if their role is seen to be genuinely supportive by health professionals and patients. We also argue that increased public involvement at the national level in policy debate about control of genetic testing is needed.
1685-1688
Parker, Michael
f08fdd2b-3c14-472f-b222-0ced5bb71bd4
Lucassen, Anneke
3f282fe4-b839-443c-8c81-6b8a507153c7
2002
Parker, Michael
f08fdd2b-3c14-472f-b222-0ced5bb71bd4
Lucassen, Anneke
3f282fe4-b839-443c-8c81-6b8a507153c7
Abstract
Developments in genetic testing and increased public awareness of inherited disease have led to increasing interest in and concern about the ethical issues raised by clinical genetics. We looked at methods for ethical management of genetic testing, and investigated the advantages and limitations of use of ethical guidelines in clinical genetics. We believe that a key element in successful management of genetic testing in addition to guidelines will be availability of ethics training and support for geneticists, nurses, and counsellors. Clinical ethics committees and clinical ethicists can act as a useful focus for such training and advice if their role is seen to be genuinely supportive by health professionals and patients. We also argue that increased public involvement at the national level in policy debate about control of genetic testing is needed.
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Published date: 2002
Organisations:
Cancer Sciences
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Local EPrints ID: 26512
URI: http://eprints.soton.ac.uk/id/eprint/26512
ISSN: 0140-6736
PURE UUID: b7eb1ce8-8ce3-4e96-a872-debf5114095e
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Date deposited: 21 Apr 2006
Last modified: 15 Mar 2024 07:11
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Author:
Michael Parker
Author:
Anneke Lucassen
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