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Individual quality of life in long-term survivors of Hodgkin's lymphoma - a comparative study

Wettergren, L., Bjorkholm, M., Axdorph, U., Bowling, A. and Langius-Eklof, A. (2003) Individual quality of life in long-term survivors of Hodgkin's lymphoma - a comparative study Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 12, (5), 545 - 554. (doi:10.1023/A:1025024008139). (PMID:13677499).

Record type: Article


This study aimed to use an individual approach in evaluating QoL in long-term survivors of Hodgkin's lymphoma (HL) and their view of what impact the disease has had on life using an extended version of the The Schedule for the Evaluation of the Individual quality of life-Direct Weighting (SEIQoL-DW). Adult long-term survivors from HL ( n = 121) were compared with a randomly selected sample of the general population in Stockholm ( n = 236). The results showed that the most commonly nominated areas (> 50% of patients and controls) important in life were family, personal health, work and relations to other people. The HL survivors mentioned leisure and finances less frequently than the controls. However, neither the current status in the different areas nor the QoL index score differed between survivors and controls. Thoughts and worries around disease, fatigue and loss of energy and late effects on skin and mucous membrane were the most commonly reported problems following HL. Sixty-six percent of the survivors reported a change in their view of life and of themselves. Demographic and disease characteristics did not influence the ratings of the chosen areas. In conclusion, long-term survivors of HL seem to have adapted well to the situation of having had a life-threatening disease and undergoing treatment, as measured with SEIQoL-DW. The extended Swedish version with a disease-specific module could be of great value when identifying specific issues that are important for the patient at time of evaluation.

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Published date: August 2003
Keywords: cancer survivors, general population, health-related quality of life, hodgkin's lymphoma, individual quality of life, seiqol-dw, disease survivors, cancer patients, psychosocial adaptation, 2nd malignancy, outcomes, risk, nonresponse, schedule
Organisations: Faculty of Health Sciences


Local EPrints ID: 334654
ISSN: 0962-9343
PURE UUID: 30ffb1c3-9949-4af3-ac85-e3bae2edb042

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Date deposited: 28 Mar 2012 13:14
Last modified: 18 Jul 2017 06:11

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Author: L. Wettergren
Author: M. Bjorkholm
Author: U. Axdorph
Author: A. Bowling
Author: A. Langius-Eklof

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