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Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services

Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services
Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services
Abstract
Purpose
The aim of this paper was to briefly describe how the experience-based co-design (EBCD) approach was used to identify and implement improvements in the experiences of breast and lung cancer patients before (1) comparing the issues identified as shaping patient experiences in the different tumour groups and (2) exploring participants' reflections on the value and key characteristics of this approach to improving patient experiences.
Methods
Fieldwork involved 36 filmed narrative patient interviews, 219 h of ethnographic observation, 63 staff interviews and a facilitated co-design change process involving patient and staff interviewees over a 12-month period. Four of the staff and five patients were interviewed about their views on the value of the approach and its key characteristics. The project setting was a large, inner-city cancer centre in England.
Results
Patients from both tumour groups generally identified similar issues (or 'touchpoints') that shaped their experience of care, although breast cancer patients identified a need for better information about side effects of treatment and end of treatment whereas lung cancer patients expressed a need for more information post-surgery. Although the issues were broadly similar, the particular improvement priorities patients and staff chose to work on together were tumour specific. Interviewees highlighted four characteristics of the EBCD approach as being key to its successful implementation: patient involvement, patient responsibility and empowerment, a sense of community, and a close connection between their experiences and the subsequent improvement priorities.
Conclusion
EBCD positions patients as active partners with staff in quality improvement. Breast and lung cancer patients identified similar touchpoints in their experiences, but these were translated into different improvement priorities for each tumour type. This is an important consideration when developing patient-centred cancer services across different tumour types.
0941-4355
2639-2647
Tsianakas, Vicki
74237413-f2e3-4598-b951-e547ddc34504
Robert, Glenn
baad923d-0b26-492d-bb62-d3038bc662e6
Maben, Jill
3240b527-420c-498e-9f66-557b96561f40
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Dale, Catherine
151bf5f0-0508-49f9-be4f-8df1ce8d397b
Wiseman, Theresa
6863fcf4-9789-48ef-8532-783a5222c6ad
Tsianakas, Vicki
74237413-f2e3-4598-b951-e547ddc34504
Robert, Glenn
baad923d-0b26-492d-bb62-d3038bc662e6
Maben, Jill
3240b527-420c-498e-9f66-557b96561f40
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Dale, Catherine
151bf5f0-0508-49f9-be4f-8df1ce8d397b
Wiseman, Theresa
6863fcf4-9789-48ef-8532-783a5222c6ad

Tsianakas, Vicki, Robert, Glenn, Maben, Jill, Richardson, Alison, Dale, Catherine and Wiseman, Theresa (2012) Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services. Supportive Care in Cancer, 20, 2639-2647. (doi:10.1007/s00520-012-1470-3).

Record type: Article

Abstract

Abstract
Purpose
The aim of this paper was to briefly describe how the experience-based co-design (EBCD) approach was used to identify and implement improvements in the experiences of breast and lung cancer patients before (1) comparing the issues identified as shaping patient experiences in the different tumour groups and (2) exploring participants' reflections on the value and key characteristics of this approach to improving patient experiences.
Methods
Fieldwork involved 36 filmed narrative patient interviews, 219 h of ethnographic observation, 63 staff interviews and a facilitated co-design change process involving patient and staff interviewees over a 12-month period. Four of the staff and five patients were interviewed about their views on the value of the approach and its key characteristics. The project setting was a large, inner-city cancer centre in England.
Results
Patients from both tumour groups generally identified similar issues (or 'touchpoints') that shaped their experience of care, although breast cancer patients identified a need for better information about side effects of treatment and end of treatment whereas lung cancer patients expressed a need for more information post-surgery. Although the issues were broadly similar, the particular improvement priorities patients and staff chose to work on together were tumour specific. Interviewees highlighted four characteristics of the EBCD approach as being key to its successful implementation: patient involvement, patient responsibility and empowerment, a sense of community, and a close connection between their experiences and the subsequent improvement priorities.
Conclusion
EBCD positions patients as active partners with staff in quality improvement. Breast and lung cancer patients identified similar touchpoints in their experiences, but these were translated into different improvement priorities for each tumour type. This is an important consideration when developing patient-centred cancer services across different tumour types.

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More information

Published date: October 2012
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 337816
URI: http://eprints.soton.ac.uk/id/eprint/337816
ISSN: 0941-4355
PURE UUID: 0824e2d1-aa7a-470c-9c10-c8c5e8cfdfeb
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755

Catalogue record

Date deposited: 03 May 2012 15:07
Last modified: 15 Mar 2024 03:34

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Contributors

Author: Vicki Tsianakas
Author: Glenn Robert
Author: Jill Maben
Author: Catherine Dale
Author: Theresa Wiseman

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