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'What matters to me': an international online survey of people treating, affected by and living with lung cancer

'What matters to me': an international online survey of people treating, affected by and living with lung cancer
'What matters to me': an international online survey of people treating, affected by and living with lung cancer
Aim: Lung cancer is a common malignancy that occurs worldwide and generally has a poor prognosis. Its diagnosis presents significant physical and emotional challenges for patients and their family, friends and caregivers (FFCs). This study aimed to gain insights into patients’ and FFCs’ perspectives regarding lung cancer and its treatment, as well as physicians’ perceptions of patients’ thoughts about their illness.

Patients & methods: An international online survey was conducted, assessing 113 patients diagnosed with non-small-cell lung cancer, 70 corresponding FFCs and 188 treating physicians. Data were collected using an interactive internet-based tool, in order to establish respondents’ priorities.

Results: Interesting differences between patients’, FFCs’ and physicians’ perspectives on lung cancer were revealed. For all respondents, the primary feeling about lung cancer was described as “sadness”. Patients were more likely to express a determination to be positive, whereas fear was a common response for FFCs and was a perspective also reported by physicians. Physicians’ views on how they had communicated disease information were more positive than those of the patients, with many patients detecting physician hesitancy to communicate negative news.

Conclusion: This study provides important insights into the self-reported thoughts and feelings of patients with lung cancer, their personal networks of FFCs and the physicians who care for them.
1479-6694
883-896
Leydon, Geraldine M.
c5cdaff5-0fa1-4d38-b575-b97c2892ec40
Guerin, Maria
b016d39c-9221-4ab0-b88a-ed05fc670ab7
Eyles, Caroline
f8518cbb-669f-4cf6-bacb-4a174e385483
Jacques, Lesley
0262fc56-49f8-4b11-9e8c-1053d3ee5250
Darlison, Liz
535f0bb9-14fe-4a3a-8006-82019b5ed895
Leydon, Geraldine M.
c5cdaff5-0fa1-4d38-b575-b97c2892ec40
Guerin, Maria
b016d39c-9221-4ab0-b88a-ed05fc670ab7
Eyles, Caroline
f8518cbb-669f-4cf6-bacb-4a174e385483
Jacques, Lesley
0262fc56-49f8-4b11-9e8c-1053d3ee5250
Darlison, Liz
535f0bb9-14fe-4a3a-8006-82019b5ed895

Leydon, Geraldine M., Guerin, Maria, Eyles, Caroline, Jacques, Lesley and Darlison, Liz (2012) 'What matters to me': an international online survey of people treating, affected by and living with lung cancer. Future Oncology, 8 (7), 883-896. (doi:10.2217/fon.12.65). (PMID:22830407)

Record type: Article

Abstract

Aim: Lung cancer is a common malignancy that occurs worldwide and generally has a poor prognosis. Its diagnosis presents significant physical and emotional challenges for patients and their family, friends and caregivers (FFCs). This study aimed to gain insights into patients’ and FFCs’ perspectives regarding lung cancer and its treatment, as well as physicians’ perceptions of patients’ thoughts about their illness.

Patients & methods: An international online survey was conducted, assessing 113 patients diagnosed with non-small-cell lung cancer, 70 corresponding FFCs and 188 treating physicians. Data were collected using an interactive internet-based tool, in order to establish respondents’ priorities.

Results: Interesting differences between patients’, FFCs’ and physicians’ perspectives on lung cancer were revealed. For all respondents, the primary feeling about lung cancer was described as “sadness”. Patients were more likely to express a determination to be positive, whereas fear was a common response for FFCs and was a perspective also reported by physicians. Physicians’ views on how they had communicated disease information were more positive than those of the patients, with many patients detecting physician hesitancy to communicate negative news.

Conclusion: This study provides important insights into the self-reported thoughts and feelings of patients with lung cancer, their personal networks of FFCs and the physicians who care for them.

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More information

Published date: July 2012
Organisations: Primary Care & Population Sciences

Identifiers

Local EPrints ID: 338752
URI: http://eprints.soton.ac.uk/id/eprint/338752
ISSN: 1479-6694
PURE UUID: 1ff93d31-d3e1-4f01-b8ab-2abb35b2c45b
ORCID for Geraldine M. Leydon: ORCID iD orcid.org/0000-0001-5986-3300

Catalogue record

Date deposited: 17 May 2012 11:11
Last modified: 09 Nov 2021 03:12

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Contributors

Author: Maria Guerin
Author: Caroline Eyles
Author: Lesley Jacques
Author: Liz Darlison

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