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Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient reported outcome measures

Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient reported outcome measures
Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient reported outcome measures
Background and aims. Patient-reported outcome measures (PROMs) make it possible to assess health-status problems from the perspective of persons suffering from a disease. The objective of the paper is to examine and compare the contents of PROMs related to IBD based on the World Health Organization's International Classification of Functioning, Disability and Health (ICF) as the frame of reference.

Methods. A systematic literature review (1999–2009) in the databases Medline, EMBASE, PsycINFO, CINAHL and CENTRAL was performed to select IBD-specific PROMs. Abstracts and full-text articles were checked applying predefined eligibility criteria; IBD-specific PROMs were identified. The contents of the identified PROMs were examined by linking the items to ICF categories. The linked ICF categories of the PROMs were then compared.

Results. The review resulted in the selection of eight IBD-specific PROMs (e.g., Cleveland Global Quality of Life, Inflammatory Bowel Disease Quality of Life Questionnaire, Inflammatory Bowel Disease Questionnaire-32, Rating Form of IBD Patient Concerns, Short Inflammatory Bowel Disease Questionnaire). In total, 129 items were identified, the majority of which (n = 90; 69.8%) could be linked to specific ICF categories. None of the linked categories were contained in all PROMs. The most frequently identified categories were ‘b1300 Energy level’, ‘b5254 Flatulence’, ‘d910 Community life’ and ‘d920 Recreation and leisure’.

Conclusion. The present study provides an overview of IBD-specific PROMs and their items. The results of the content comparison provide valuable information to facilitate and account for the selection of appropriate PROMs for different purposes of data collection in clinical and research settings.
inflammatory bowel diseases, ulcerative colitis, crohn disease, international classification of functioning, disability and health, review, systematic
1873-9946
507-517
Achleitner, Ulrike
e36ebcd2-26be-409d-9ee6-0da0eda5f160
Coenen, Michaela
cbf780b8-d30a-4418-9f92-9b1f9c03cef7
Colombel, Jean-Frédéric
e3983821-7bf5-4d86-bb3e-92f82e8c8cea
Peyrin-Biroulet, Laurent
6563e0d4-1b5e-45fc-82b0-c38340d878c8
Sahakyan, Narine
14898984-1a6e-4607-a002-5951263db029
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Achleitner, Ulrike
e36ebcd2-26be-409d-9ee6-0da0eda5f160
Coenen, Michaela
cbf780b8-d30a-4418-9f92-9b1f9c03cef7
Colombel, Jean-Frédéric
e3983821-7bf5-4d86-bb3e-92f82e8c8cea
Peyrin-Biroulet, Laurent
6563e0d4-1b5e-45fc-82b0-c38340d878c8
Sahakyan, Narine
14898984-1a6e-4607-a002-5951263db029
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e

Achleitner, Ulrike, Coenen, Michaela, Colombel, Jean-Frédéric, Peyrin-Biroulet, Laurent, Sahakyan, Narine and Cieza, Alarcos (2012) Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient reported outcome measures. Journal of Crohn's and Colitis, 6 (5), 507-517. (doi:10.1016/j.crohns.2011.11.003). (PMID:22398049)

Record type: Article

Abstract

Background and aims. Patient-reported outcome measures (PROMs) make it possible to assess health-status problems from the perspective of persons suffering from a disease. The objective of the paper is to examine and compare the contents of PROMs related to IBD based on the World Health Organization's International Classification of Functioning, Disability and Health (ICF) as the frame of reference.

Methods. A systematic literature review (1999–2009) in the databases Medline, EMBASE, PsycINFO, CINAHL and CENTRAL was performed to select IBD-specific PROMs. Abstracts and full-text articles were checked applying predefined eligibility criteria; IBD-specific PROMs were identified. The contents of the identified PROMs were examined by linking the items to ICF categories. The linked ICF categories of the PROMs were then compared.

Results. The review resulted in the selection of eight IBD-specific PROMs (e.g., Cleveland Global Quality of Life, Inflammatory Bowel Disease Quality of Life Questionnaire, Inflammatory Bowel Disease Questionnaire-32, Rating Form of IBD Patient Concerns, Short Inflammatory Bowel Disease Questionnaire). In total, 129 items were identified, the majority of which (n = 90; 69.8%) could be linked to specific ICF categories. None of the linked categories were contained in all PROMs. The most frequently identified categories were ‘b1300 Energy level’, ‘b5254 Flatulence’, ‘d910 Community life’ and ‘d920 Recreation and leisure’.

Conclusion. The present study provides an overview of IBD-specific PROMs and their items. The results of the content comparison provide valuable information to facilitate and account for the selection of appropriate PROMs for different purposes of data collection in clinical and research settings.

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More information

e-pub ahead of print date: 8 December 2011
Published date: June 2012
Keywords: inflammatory bowel diseases, ulcerative colitis, crohn disease, international classification of functioning, disability and health, review, systematic
Organisations: Psychology

Identifiers

Local EPrints ID: 340791
URI: https://eprints.soton.ac.uk/id/eprint/340791
ISSN: 1873-9946
PURE UUID: 46adb38f-9263-4dab-a8e4-d2d8663d3a75

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Date deposited: 03 Jul 2012 08:55
Last modified: 18 Jul 2017 05:41

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Contributors

Author: Ulrike Achleitner
Author: Michaela Coenen
Author: Jean-Frédéric Colombel
Author: Laurent Peyrin-Biroulet
Author: Narine Sahakyan
Author: Alarcos Cieza

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