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Problems in functioning from the patient perspective using the International Classification of Functioning, Disability and Health (ICF) as a reference

Problems in functioning from the patient perspective using the International Classification of Functioning, Disability and Health (ICF) as a reference
Problems in functioning from the patient perspective using the International Classification of Functioning, Disability and Health (ICF) as a reference
We conducted a qualitative, multicenter study using a focus group design to explore the lived experiences of persons with any kind of primary sleep disorder with regard to functioning and contextual factors using six open-ended questions related to the International Classification of Functioning, Disability and Health (ICF) components. We classified the results using the ICF as a frame of reference. We identified the meaningful concepts within the transcribed data and then linked them to ICF categories according to established linking rules. The six focus groups with 27 participants yielded a total of 6986 relevant concepts, which were linked to a total of 168 different second-level ICF categories. From the patient perspective, the ICF components: (1) Body Functions; (2) Activities & Participation; and (3) Environmental Factors were equally represented; while (4) Body Structures appeared poignantly less frequently. Out of the total number of concepts, 1843 concepts (26%) were assigned to the ICF component Personal Factors, which is not yet classified but could indicate important aspects of resource management and strategy development of those who have a sleep disorder. Therefore, treatment of patients with sleep disorders must not be limited to anatomical and (patho-)physiological changes, but should also consider a more comprehensive view that includes patient's demands, strategies and resources in daily life and the contextual circumstances surrounding the individual.
focus groups, icf, patient perspective, qualitative study, sleep disorders, who
0962-1105
171-182
Gradinger, Felix
78823651-e358-414b-86f5-6ad7b6088389
Köhler, Barbara
b95651df-9ee2-4926-a1e6-e56a21a8deaa
Khatami, Ramin
92e5dd65-73e2-4363-bf7b-f73dbdabed77
Mathis, Johannes
1a76d6a5-d6b5-43a8-bcf8-68be1c42a635
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Bassetti, Claudio
ba8314cd-1dbe-4644-bcf1-54ac97c7636e
Gradinger, Felix
78823651-e358-414b-86f5-6ad7b6088389
Köhler, Barbara
b95651df-9ee2-4926-a1e6-e56a21a8deaa
Khatami, Ramin
92e5dd65-73e2-4363-bf7b-f73dbdabed77
Mathis, Johannes
1a76d6a5-d6b5-43a8-bcf8-68be1c42a635
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Bassetti, Claudio
ba8314cd-1dbe-4644-bcf1-54ac97c7636e

Gradinger, Felix, Köhler, Barbara, Khatami, Ramin, Mathis, Johannes, Cieza, Alarcos and Bassetti, Claudio (2011) Problems in functioning from the patient perspective using the International Classification of Functioning, Disability and Health (ICF) as a reference. Journal of Sleep Research, 20 (1), part 2, 171-182. (doi:10.1111/j.1365-2869.2010.00862.x). (PMID:20642749)

Record type: Article

Abstract

We conducted a qualitative, multicenter study using a focus group design to explore the lived experiences of persons with any kind of primary sleep disorder with regard to functioning and contextual factors using six open-ended questions related to the International Classification of Functioning, Disability and Health (ICF) components. We classified the results using the ICF as a frame of reference. We identified the meaningful concepts within the transcribed data and then linked them to ICF categories according to established linking rules. The six focus groups with 27 participants yielded a total of 6986 relevant concepts, which were linked to a total of 168 different second-level ICF categories. From the patient perspective, the ICF components: (1) Body Functions; (2) Activities & Participation; and (3) Environmental Factors were equally represented; while (4) Body Structures appeared poignantly less frequently. Out of the total number of concepts, 1843 concepts (26%) were assigned to the ICF component Personal Factors, which is not yet classified but could indicate important aspects of resource management and strategy development of those who have a sleep disorder. Therefore, treatment of patients with sleep disorders must not be limited to anatomical and (patho-)physiological changes, but should also consider a more comprehensive view that includes patient's demands, strategies and resources in daily life and the contextual circumstances surrounding the individual.

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More information

e-pub ahead of print date: 19 July 2010
Published date: March 2011
Keywords: focus groups, icf, patient perspective, qualitative study, sleep disorders, who
Organisations: Psychology

Identifiers

Local EPrints ID: 341098
URI: http://eprints.soton.ac.uk/id/eprint/341098
ISSN: 0962-1105
PURE UUID: a6b0daed-c3a2-4d7a-975b-2fa6f027bdeb

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Date deposited: 13 Jul 2012 09:59
Last modified: 14 Mar 2024 11:34

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Contributors

Author: Felix Gradinger
Author: Barbara Köhler
Author: Ramin Khatami
Author: Johannes Mathis
Author: Alarcos Cieza
Author: Claudio Bassetti

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