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Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning

Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning
Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning
Purpose. Content comparison of health-related quality of life (HRQOL) measures is currently important because of the varying use of concepts and operationalisations. Our objective was to use the International Classification of Functioning Children and Youth version (ICF-CY) as a standard by which to compare the content of all cerebral palsy (CP) disease-specific HRQOL measures.

Methods. MEDLINE and PsycINFO databases were searched up to September 2008. The content of HRQOL measures was linked to the ICF-CY by two trained assessors. Agreement was calculated using kappa (?) statistic.

Results. Four disease-specific HRQOL measures were identified. Three generic measures were selected as a content comparison group. A total of 576 concepts contained in the measures were identified. Eighty-nine percent (n??=??510) were linked to 127 different ICF-CY categories. Overall ? agreement was 0.76 (95% CI: 0.75–0.77). Forty percent of concepts were linked to the activity and participation component. The measures varied in the number of concepts and the distribution of concepts by ICF-CY components.

Conclusions. The ICF-CY provided an international accepted, structured framework for the content comparison of CP-specific and generic HRQOL measures. The results will provide clinicians and researchers with additional information, useful when selecting HRQOL measures.
cerebral palsy, health-related quality of life, icf-cy
0963-8288
1330-1339
Schiariti, Veronica
82397cda-2979-449e-b562-6fadbb190d07
Fayed, Nora
ad6f08cd-6389-4c62-a084-7b9085d4392f
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Klassen, Anne
54c93f64-8c04-4f85-b623-a1d8871b91fe
O'donnell, Maureen
7fbc2f92-6a89-4950-94fa-69c6d8f7bd92
Schiariti, Veronica
82397cda-2979-449e-b562-6fadbb190d07
Fayed, Nora
ad6f08cd-6389-4c62-a084-7b9085d4392f
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Klassen, Anne
54c93f64-8c04-4f85-b623-a1d8871b91fe
O'donnell, Maureen
7fbc2f92-6a89-4950-94fa-69c6d8f7bd92

Schiariti, Veronica, Fayed, Nora, Cieza, Alarcos, Klassen, Anne and O'donnell, Maureen (2011) Content comparison of health-related quality of life measures for cerebral palsy based on the International Classification of Functioning. Disability and Rehabilitation, 33 (15-16), 1330-1339. (doi:10.3109/09638288.2010.531371). (PMID:21067341)

Record type: Article

Abstract

Purpose. Content comparison of health-related quality of life (HRQOL) measures is currently important because of the varying use of concepts and operationalisations. Our objective was to use the International Classification of Functioning Children and Youth version (ICF-CY) as a standard by which to compare the content of all cerebral palsy (CP) disease-specific HRQOL measures.

Methods. MEDLINE and PsycINFO databases were searched up to September 2008. The content of HRQOL measures was linked to the ICF-CY by two trained assessors. Agreement was calculated using kappa (?) statistic.

Results. Four disease-specific HRQOL measures were identified. Three generic measures were selected as a content comparison group. A total of 576 concepts contained in the measures were identified. Eighty-nine percent (n??=??510) were linked to 127 different ICF-CY categories. Overall ? agreement was 0.76 (95% CI: 0.75–0.77). Forty percent of concepts were linked to the activity and participation component. The measures varied in the number of concepts and the distribution of concepts by ICF-CY components.

Conclusions. The ICF-CY provided an international accepted, structured framework for the content comparison of CP-specific and generic HRQOL measures. The results will provide clinicians and researchers with additional information, useful when selecting HRQOL measures.

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More information

Published date: 2011
Keywords: cerebral palsy, health-related quality of life, icf-cy
Organisations: Psychology

Identifiers

Local EPrints ID: 341195
URI: http://eprints.soton.ac.uk/id/eprint/341195
ISSN: 0963-8288
PURE UUID: eae20764-1e4f-414d-b88a-8b119390f15f

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Date deposited: 17 Jul 2012 11:40
Last modified: 14 Mar 2024 11:36

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Contributors

Author: Veronica Schiariti
Author: Nora Fayed
Author: Alarcos Cieza
Author: Anne Klassen
Author: Maureen O'donnell

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