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Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients

Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients
Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients
Introduction: Functioning is recognized as an important study outcome in chronic widespread pain (CWP). The Comprehensive ICF Core Set for CWP is an application of the International Classification of Functioning, Disability and Health (ICF) with the purpose of representing the typical spectrum of functioning of patients with CWP. The objective of the study was to add evidence to the validation of the Comprehensive ICF Core Set for CWP from the patient perspective. The specific aims were to explore the aspects of functioning and health important to patients with fibromyalgia, and to examine to what extent these aspects are represented by the current version of the Comprehensive ICF Core Set for CWP.

Methods: The sampling of patients followed the maximum variation strategy. Sample size was determined by saturation. The focus groups were digitally recorded and transcribed verbatim. The meaning condensation procedure was used for qualitative data analysis. After qualitative data analysis, the identified concepts were linked to ICF categories.

Results: Thirty-three patients participated in six focus groups. Fifty-four ICF categories out of 67 categories of the Comprehensive ICF Core Set for CWP were reported by the patients. Forty-eight additional categories that are not covered in the Comprehensive ICF Core Set for CWP were raised.

Conclusions: Most ICF categories of the existing version of the Comprehensive ICF Core Set for CWP could be confirmed from the patient perspective. However, several categories not included in the Core Set emerged and should be considered for inclusion.
1478-6354
R67-[12pp]
Hieblinger, Robin
c016fc7a-671d-41f0-9ba3-624b80546498
Coenen, Michaela
cbf780b8-d30a-4418-9f92-9b1f9c03cef7
Stucki, Gerold
0534525c-103b-45be-b0a5-061d8867ef0d
Winkelmann, Andreas
aef50cc4-0004-417f-8af0-03410f452696
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Hieblinger, Robin
c016fc7a-671d-41f0-9ba3-624b80546498
Coenen, Michaela
cbf780b8-d30a-4418-9f92-9b1f9c03cef7
Stucki, Gerold
0534525c-103b-45be-b0a5-061d8867ef0d
Winkelmann, Andreas
aef50cc4-0004-417f-8af0-03410f452696
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e

Hieblinger, Robin, Coenen, Michaela, Stucki, Gerold, Winkelmann, Andreas and Cieza, Alarcos (2009) Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients. Arthritis Research & Therapy, 11 (3), R67-[12pp]. (doi:10.1186/ar2696). (PMID:19442275)

Record type: Article

Abstract

Introduction: Functioning is recognized as an important study outcome in chronic widespread pain (CWP). The Comprehensive ICF Core Set for CWP is an application of the International Classification of Functioning, Disability and Health (ICF) with the purpose of representing the typical spectrum of functioning of patients with CWP. The objective of the study was to add evidence to the validation of the Comprehensive ICF Core Set for CWP from the patient perspective. The specific aims were to explore the aspects of functioning and health important to patients with fibromyalgia, and to examine to what extent these aspects are represented by the current version of the Comprehensive ICF Core Set for CWP.

Methods: The sampling of patients followed the maximum variation strategy. Sample size was determined by saturation. The focus groups were digitally recorded and transcribed verbatim. The meaning condensation procedure was used for qualitative data analysis. After qualitative data analysis, the identified concepts were linked to ICF categories.

Results: Thirty-three patients participated in six focus groups. Fifty-four ICF categories out of 67 categories of the Comprehensive ICF Core Set for CWP were reported by the patients. Forty-eight additional categories that are not covered in the Comprehensive ICF Core Set for CWP were raised.

Conclusions: Most ICF categories of the existing version of the Comprehensive ICF Core Set for CWP could be confirmed from the patient perspective. However, several categories not included in the Core Set emerged and should be considered for inclusion.

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e-pub ahead of print date: 14 May 2009
Published date: 2009
Organisations: Psychology

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Local EPrints ID: 341353
URI: http://eprints.soton.ac.uk/id/eprint/341353
ISSN: 1478-6354
PURE UUID: 1bfde26d-b93d-4ae7-8dce-12d2eddcd579

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Date deposited: 20 Jul 2012 09:28
Last modified: 14 Mar 2024 11:38

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Contributors

Author: Robin Hieblinger
Author: Michaela Coenen
Author: Gerold Stucki
Author: Andreas Winkelmann
Author: Alarcos Cieza

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