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Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health

Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health
Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health
Objective. To analyze the content of outcome measures commonly used to assess health in patients with fibromyalgia (FM) by linking the items of the instruments with the International Classification of Functioning, Disability and Health (ICF) in order to evaluate the adequacy of currently used measures.

Methods. Questionnaires used in FM were identified in a structured literature search. All concepts included in the items of the questionnaires were linked to ICF categories, according to previously published linking rules, by 2 independent health professionals. The percentages of linked ICF categories addressing the different ICF components were calculated.

Results. Generic and symptom-specific instruments were included. From the 296 items contained in all 16 instruments, 447 concepts were extracted and then linked to 52 ICF categories of the component body functions, 1 category of the component body structure, 40 categories of the component activities and participation, and 9 categories of the component environmental factors. More than half of the concepts identified were linked to body function, fewer were linked to activities and participation, and only concepts of 4 instruments were linked to the ICF component environmental factors.

Conclusion. Many concepts were linked to the categories in the ICF component body functions. While linking to the broad category, purportedly similar instruments often covered widely varying areas of function at more fine-grained levels of detail. Some categories, such as environmental factors, were barely covered by any of the instruments and might constitute an important aspect of health deserving better coverage and future development.
0004-3591
650-658
Prodinger, Birgit
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Cieza, Alarcos
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Williams, David A.
094ce3d7-eb21-4c00-98b3-27d956747a60
Mease, Philip
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Boonen, Annelies
c32bd0a4-48b2-45f9-9ab3-5ff0074b7f32
Kerschan-Schindl, Katharina
d23814b6-3c6c-4cd8-98f1-72637b930c63
Fialka-Moser, Veronika
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Smolen, Josef
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Stucki, Gerold
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Machold, Klaus
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Stamm, Tanja
abe85120-cb3d-4b86-8e65-ad91c602445c
Prodinger, Birgit
1bbe7d35-ca22-4e92-8d77-a9ea3e378dc8
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Williams, David A.
094ce3d7-eb21-4c00-98b3-27d956747a60
Mease, Philip
988efb45-148c-463e-b44d-d885c8a121c1
Boonen, Annelies
c32bd0a4-48b2-45f9-9ab3-5ff0074b7f32
Kerschan-Schindl, Katharina
d23814b6-3c6c-4cd8-98f1-72637b930c63
Fialka-Moser, Veronika
a129b20f-1084-4604-83f2-0cd0c72c97de
Smolen, Josef
6eeaaaae-306e-4e62-80bd-69a81013eb69
Stucki, Gerold
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Machold, Klaus
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Stamm, Tanja
abe85120-cb3d-4b86-8e65-ad91c602445c

Prodinger, Birgit, Cieza, Alarcos, Williams, David A., Mease, Philip, Boonen, Annelies, Kerschan-Schindl, Katharina, Fialka-Moser, Veronika, Smolen, Josef, Stucki, Gerold, Machold, Klaus and Stamm, Tanja (2008) Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health. Arthritis & Rheumatism, 59 (5), 650-658. (doi:10.1002/art.23559). (PMID:18438895)

Record type: Article

Abstract

Objective. To analyze the content of outcome measures commonly used to assess health in patients with fibromyalgia (FM) by linking the items of the instruments with the International Classification of Functioning, Disability and Health (ICF) in order to evaluate the adequacy of currently used measures.

Methods. Questionnaires used in FM were identified in a structured literature search. All concepts included in the items of the questionnaires were linked to ICF categories, according to previously published linking rules, by 2 independent health professionals. The percentages of linked ICF categories addressing the different ICF components were calculated.

Results. Generic and symptom-specific instruments were included. From the 296 items contained in all 16 instruments, 447 concepts were extracted and then linked to 52 ICF categories of the component body functions, 1 category of the component body structure, 40 categories of the component activities and participation, and 9 categories of the component environmental factors. More than half of the concepts identified were linked to body function, fewer were linked to activities and participation, and only concepts of 4 instruments were linked to the ICF component environmental factors.

Conclusion. Many concepts were linked to the categories in the ICF component body functions. While linking to the broad category, purportedly similar instruments often covered widely varying areas of function at more fine-grained levels of detail. Some categories, such as environmental factors, were barely covered by any of the instruments and might constitute an important aspect of health deserving better coverage and future development.

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e-pub ahead of print date: 25 April 2008
Published date: 15 May 2008
Organisations: Psychology

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Local EPrints ID: 341378
URI: http://eprints.soton.ac.uk/id/eprint/341378
ISSN: 0004-3591
PURE UUID: b44780e6-5ea1-425e-9b0d-796dfef4d830

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Date deposited: 20 Jul 2012 12:26
Last modified: 14 Mar 2024 11:38

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Contributors

Author: Birgit Prodinger
Author: Alarcos Cieza
Author: David A. Williams
Author: Philip Mease
Author: Annelies Boonen
Author: Katharina Kerschan-Schindl
Author: Veronika Fialka-Moser
Author: Josef Smolen
Author: Gerold Stucki
Author: Klaus Machold
Author: Tanja Stamm

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