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Evaluating proFamilies-dementia: adopting photovoice to capture clinical significance

Guerra, Sara R., Rodrigues, Sofia P., Demain, Sara, Figueiredo, Daniela M. and Sousa, Liliana X. (2012) Evaluating proFamilies-dementia: adopting photovoice to capture clinical significance Dementia (doi:10.1177/1471301212437779).

Record type: Article


Dementia is a challenging chronic illness that affects the patients and their families. Families often perform a full-time, specialised role, which requires expert knowledge and skills. This paper describes the evaluation of proFamilies-dementia (a programme developed to support families that care for a relative with dementia) using an innovative participatory methodology: photovoice, a qualitative method of research that uses photography and voice to access people’s experiences. The programme was evaluated in order to identify the positive and negative impacts of the intervention on individuals and families; the advantages and disadvantages of photovoice as a participatory tool were also captured. The sample consisted of six people from five families. Participants identified only positive impacts of the programme, including better emotional management, normalisation of feelings and increased focus on self-care. Photovoice facilitated access to the process of change initiated by proFamilies-dementia, described by a process of going beyond illness, negativity and loneliness.

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e-pub ahead of print date: 16 March 2012
Organisations: Faculty of Health Sciences


Local EPrints ID: 342685
ISSN: 1471-3012
PURE UUID: 5d98a3ac-27f8-4b3f-8b6c-96180e413133

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Date deposited: 12 Sep 2012 15:33
Last modified: 18 Jul 2017 05:27

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Author: Sara R. Guerra
Author: Sofia P. Rodrigues
Author: Sara Demain
Author: Daniela M. Figueiredo
Author: Liliana X. Sousa

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