Planning for end of life care within lay-led chronic illness self-management training: the significance of 'death awareness' and biographical context in participant accounts


Sanders, Caroline, Rogers, Anne, Gately, Claire and Kennedy, Anne (2007) Planning for end of life care within lay-led chronic illness self-management training: the significance of 'death awareness' and biographical context in participant accounts Social Science & Medicine, 66, (4), pp. 982-993. (doi:10.1016/j.socscimed.2007.11.003).

Download

[img] PDF planning_or_end_of_life.pdf - Other
Restricted to Repository staff only

Download (303kB)

Description/Abstract

UK health policy dictates that Advance Care Planning (ACP), including the use of living wills, promotes choice and quality regarding end of life care for those with chronic and life-threatening conditions and it has been incorporated in self-management training. This paper reports a qualitative evaluation based on in-depth interviews with 31 respondents who had completed a UK based lay-led self-management course (The Expert Patients Programme), and 12 respondents who had completed the same course adapted for people who are HIV positive. We draw upon previous social research on ‘death awareness’ and the biographical context of illness experience and management in examining the impact of incorporating this subject within a self-management intervention. The analysis demonstrates that many participants were unprepared to face issues raised in the session with material represented as disrupting some aspects of illness adaptation and existing views about death and dying. Positioning educational material on death and dying alongside that on ‘positive’ self-management of illness highlights the complexities and sensitivities of planning for end of life care with implications for future educational interventions of this type.

Item Type: Article
Digital Object Identifier (DOI): doi:10.1016/j.socscimed.2007.11.003
ISSNs: 0277-9536 (print)
Keywords: uk, chronic illness, biographical disruption, self-management training, advance care planning, death and dying, expert patients, hiv
Organisations: Faculty of Health Sciences
ePrint ID: 344362
Date :
Date Event
26 December 2007e-pub ahead of print
February 2008Published
Date Deposited: 22 Oct 2012 10:29
Last Modified: 17 Apr 2017 16:27
Further Information:Google Scholar
URI: http://eprints.soton.ac.uk/id/eprint/344362

Actions (login required)

View Item View Item