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The emergent modes of dementia activism

Bartlett, Ruth (2012) The emergent modes of dementia activism Ageing & Society, pp. 1-22. (doi:10.1017/S0144686X12001158).

Record type: Article


After decades of silencing and discrimination, people with dementia are beginning to join forces, take action, and campaign for social change. Drawing on data obtained from ‘activists’ with dementia using diary-interview method and participant observation, this paper considers the emergent modes of dementia activism in the context of the social movement literature, and in particular, work emphasising the role of networks in health social movements. The study identified three emergent modes of dementia activism; these were the ‘protecting-self against decline’ mode, ‘(re) gaining respect’ mode, and ‘creating connections with other people with dementia’ mode. Taken together, these modes show how a sense of elapsing time pervades this form of activism. The investigation reinforces the contention that time is a dominated force that structures human motivation and goals. Furthermore, it raises the possibility that activism can protect against decline amongst people with dementia given the appropriate temporal space

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Published date: 21 November 2012
Organisations: Faculty of Health Sciences


Local EPrints ID: 344600
PURE UUID: 2aeda0d1-8110-458f-a517-0bc73c2fac83
ORCID for Ruth Bartlett: ORCID iD

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Date deposited: 26 Oct 2012 13:58
Last modified: 18 Jul 2017 05:15

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Author: Ruth Bartlett ORCID iD

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