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A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients

A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients
A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients
Purpose:This study aims to describe the supportive care needs of informal caregivers (ICG) of adult bone marrow transplant (BMT) patients. In addition, we explored relationships between levels of unmet need, psychological morbidity and patient and ICG characteristics.

Methods and sample: We invited patients within 24 months of BMT to participate in a cross-sectional survey. Consenting patients asked their ICG to complete and return the questionnaire booklet. Measures included the Supportive Care Needs Survey Partners and Carers and General Health Questionnaire.

Key results: Two hundred patients were approached, and 98 completed questionnaires were received (response rate?=?49 %). We found high unmet need and psychological morbidity among ICGs and an association between ICG unmet need and psychological morbidity. Patient functioning, particularly anxiety and depression, sexual dysfunction and resumption of usual activities impacted on ICG unmet need and psychological morbidity. No associations were found between ICG unmet need and psychological morbidity and the following variables: type of BMT, time from BMT, ICG gender, number of dependents and patient age.

Conclusion: ICG of BMT patients have high levels of unmet need and psychological morbidity in the months that follow a BMT. This highlights the importance of thorough needs assessment to ensure limited resources are targeted to those most in need.
bmt, informal caregivers, carers, supportive care needs
0941-4355
977-986
Armoogum, J.
ec892574-ef42-4e0d-bd3c-d2b71e97c988
Richardson, A.
3db30680-aa47-43a5-b54d-62d10ece17b7
Armes, J.
162c2c72-239b-425d-af92-77c0b5c7a432
Armoogum, J.
ec892574-ef42-4e0d-bd3c-d2b71e97c988
Richardson, A.
3db30680-aa47-43a5-b54d-62d10ece17b7
Armes, J.
162c2c72-239b-425d-af92-77c0b5c7a432

Armoogum, J., Richardson, A. and Armes, J. (2012) A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients. Supportive Care in Cancer, 21, 977-986. (doi:10.1007/s00520-012-1615-4).

Record type: Article

Abstract

Purpose:This study aims to describe the supportive care needs of informal caregivers (ICG) of adult bone marrow transplant (BMT) patients. In addition, we explored relationships between levels of unmet need, psychological morbidity and patient and ICG characteristics.

Methods and sample: We invited patients within 24 months of BMT to participate in a cross-sectional survey. Consenting patients asked their ICG to complete and return the questionnaire booklet. Measures included the Supportive Care Needs Survey Partners and Carers and General Health Questionnaire.

Key results: Two hundred patients were approached, and 98 completed questionnaires were received (response rate?=?49 %). We found high unmet need and psychological morbidity among ICGs and an association between ICG unmet need and psychological morbidity. Patient functioning, particularly anxiety and depression, sexual dysfunction and resumption of usual activities impacted on ICG unmet need and psychological morbidity. No associations were found between ICG unmet need and psychological morbidity and the following variables: type of BMT, time from BMT, ICG gender, number of dependents and patient age.

Conclusion: ICG of BMT patients have high levels of unmet need and psychological morbidity in the months that follow a BMT. This highlights the importance of thorough needs assessment to ensure limited resources are targeted to those most in need.

Full text not available from this repository.

More information

Accepted/In Press date: October 2012
e-pub ahead of print date: 20 October 2012
Keywords: bmt, informal caregivers, carers, supportive care needs
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 344623
URI: https://eprints.soton.ac.uk/id/eprint/344623
ISSN: 0941-4355
PURE UUID: e5578058-5382-4b99-a586-700bf436afb8
ORCID for A. Richardson: ORCID iD orcid.org/0000-0003-3127-5755

Catalogue record

Date deposited: 29 Oct 2012 15:15
Last modified: 06 Jun 2018 12:34

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