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Falling in Parkinson’s disease: the impact on informal caregivers

Falling in Parkinson’s disease: the impact on informal caregivers
Falling in Parkinson’s disease: the impact on informal caregivers
Purpose: The aim of this study was to explore the views and experiences of the informal caregivers of repeat fallers with Parkinson's disease.
Method: Individuals were invited to participate in this study if they were the informal caregiver of a person with Parkinson's disease (PD) who had experienced more than one fall in the previous 12 months. Participants were interviewed about their experience of managing falls using a semi-structured interview schedule. Interview data were transcribed and analysed using thematic analysis.
Results: Fourteen caregivers (11 female) participated in the study. All were marital partners of a repeat faller with Parkinson's disease. The average age of the participants was 69.9 years (44?-?79). Their partners had had PD for an average of 16.7 years. Six major themes emerged from the analysis of the interview data, four directly related to falls management (the falls; consequences of the falls for the person with PD; caregivers' experiences of falls; consequences of falls for the caregiver). The majority of caregivers were frightened about their spouse falling. They used a number of methods of getting their spouse up from the floor but often injured themselves as a consequence. Caregivers highlighted the high level of care they provided and the social and psychological impact of the condition on them. They received limited help in looking after their spouse and little information about falls or about the disease in general.
Conclusion: Caregivers in this study felt unprepared for their role and expressed a need for more support and advice, especially about managing falls.
0963-8288
1360-1366
Davey, Christine
08d39ad0-3e76-4834-b86c-4f76fc915d4c
Wiles, Rose
5bdc597b-716c-4f60-9f45-631ecca25571
Ashburn, Ann
818b9ce8-f025-429e-9532-43ee4fd5f991
Murphy, Caroline
6f95b133-c7a6-4852-96a8-52fe28fbc075
Davey, Christine
08d39ad0-3e76-4834-b86c-4f76fc915d4c
Wiles, Rose
5bdc597b-716c-4f60-9f45-631ecca25571
Ashburn, Ann
818b9ce8-f025-429e-9532-43ee4fd5f991
Murphy, Caroline
6f95b133-c7a6-4852-96a8-52fe28fbc075

Davey, Christine, Wiles, Rose, Ashburn, Ann and Murphy, Caroline (2004) Falling in Parkinson’s disease: the impact on informal caregivers. Disability and Rehabilitation, 26 (23), 1360-1366. (doi:10.1080/09638280400000195).

Record type: Article

Abstract

Purpose: The aim of this study was to explore the views and experiences of the informal caregivers of repeat fallers with Parkinson's disease.
Method: Individuals were invited to participate in this study if they were the informal caregiver of a person with Parkinson's disease (PD) who had experienced more than one fall in the previous 12 months. Participants were interviewed about their experience of managing falls using a semi-structured interview schedule. Interview data were transcribed and analysed using thematic analysis.
Results: Fourteen caregivers (11 female) participated in the study. All were marital partners of a repeat faller with Parkinson's disease. The average age of the participants was 69.9 years (44?-?79). Their partners had had PD for an average of 16.7 years. Six major themes emerged from the analysis of the interview data, four directly related to falls management (the falls; consequences of the falls for the person with PD; caregivers' experiences of falls; consequences of falls for the caregiver). The majority of caregivers were frightened about their spouse falling. They used a number of methods of getting their spouse up from the floor but often injured themselves as a consequence. Caregivers highlighted the high level of care they provided and the social and psychological impact of the condition on them. They received limited help in looking after their spouse and little information about falls or about the disease in general.
Conclusion: Caregivers in this study felt unprepared for their role and expressed a need for more support and advice, especially about managing falls.

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Published date: 2004

Identifiers

Local EPrints ID: 35122
URI: http://eprints.soton.ac.uk/id/eprint/35122
ISSN: 0963-8288
PURE UUID: f29c84e8-cbed-46db-89ce-c6d63b535a87

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Date deposited: 15 May 2006
Last modified: 15 Jul 2019 19:06

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Contributors

Author: Christine Davey
Author: Rose Wiles
Author: Ann Ashburn
Author: Caroline Murphy

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