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The Diabetes Attitudes, Wishes and Needs second study(DAWN2) cross-national benchmarking indicators for family members living with people with diabetes

The Diabetes Attitudes, Wishes and Needs second study(DAWN2) cross-national benchmarking indicators for family members living with people with diabetes
The Diabetes Attitudes, Wishes and Needs second study(DAWN2) cross-national benchmarking indicators for family members living with people with diabetes
AIMS: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study examined the experiences of family members of people with diabetes for benchmarking and identifying unmet needs or areas for improvement to assist family members and those with diabetes to effectively self-manage.

METHODS: In total, 2057 family members of people with diabetes participated in an online, telephone or in-person survey designed to assess the impact of diabetes on family life, family support for people with diabetes and educational and community support.

RESULTS: Supporting a relative with diabetes was perceived as a burden by 35.3% (range across countries 10.6-61.7%) of respondents. Over half of respondents [51.4% (22.5-76.0%)] rated their quality of life as 'good' or 'very good'. However, distress about the person with diabetes was high, with 61.3% (31.5-86.4%) worried about hypoglycaemia. The impact of diabetes on aspects of life was felt by 51.8% (46.9-58.6%). The greatest negative effect was on emotional well-being [44.6% (31.8-63.0%)], although depression was less common [11.6% (4.2-20.0%)]. Many respondents did not know how to help the person with diabetes [37.1% (17.5-53.0%)] and wanted to be more involved in their care [39.4% (15.5-61.7%)]. Participation in diabetes educational programmes was low [23.1% (9.4-43.3%)], although most of those who participated found them helpful [72.1% (42.1-90.3%)].

CONCLUSIONS: Diabetes has a negative impact on family members of people with diabetes. DAWN2 provides benchmarking indicators of family members' psychosocial needs that will help identify the support required for, and from, them to improve the lives of people with diabetes and their families.

0742-3071
778-788
Kovacs Burns, K
b7ea8fa5-575c-4c6e-b1a0-cf7c256bfb9b
Nicolucci, A
43ca602a-c704-45f1-9c5e-a854c287ace7
Holt, R.I.G.
d54202e1-fcf6-4a17-a320-9f32d7024393
Willaing, I
66438d9d-e566-403a-b616-7f79ced71b23
Hermanns, N
77f87282-a5de-456f-b8eb-5cea3d87d824
Kovacs Burns, K
b7ea8fa5-575c-4c6e-b1a0-cf7c256bfb9b
Nicolucci, A
43ca602a-c704-45f1-9c5e-a854c287ace7
Holt, R.I.G.
d54202e1-fcf6-4a17-a320-9f32d7024393
Willaing, I
66438d9d-e566-403a-b616-7f79ced71b23
Hermanns, N
77f87282-a5de-456f-b8eb-5cea3d87d824

Kovacs Burns, K, Nicolucci, A, Holt, R.I.G., Willaing, I and Hermanns, N (2013) The Diabetes Attitudes, Wishes and Needs second study(DAWN2) cross-national benchmarking indicators for family members living with people with diabetes. Diabetic Medicine, 30 (7), 778-788. (doi:10.1111/dme.12239). (PMID:23701236)

Record type: Article

Abstract

AIMS: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study examined the experiences of family members of people with diabetes for benchmarking and identifying unmet needs or areas for improvement to assist family members and those with diabetes to effectively self-manage.

METHODS: In total, 2057 family members of people with diabetes participated in an online, telephone or in-person survey designed to assess the impact of diabetes on family life, family support for people with diabetes and educational and community support.

RESULTS: Supporting a relative with diabetes was perceived as a burden by 35.3% (range across countries 10.6-61.7%) of respondents. Over half of respondents [51.4% (22.5-76.0%)] rated their quality of life as 'good' or 'very good'. However, distress about the person with diabetes was high, with 61.3% (31.5-86.4%) worried about hypoglycaemia. The impact of diabetes on aspects of life was felt by 51.8% (46.9-58.6%). The greatest negative effect was on emotional well-being [44.6% (31.8-63.0%)], although depression was less common [11.6% (4.2-20.0%)]. Many respondents did not know how to help the person with diabetes [37.1% (17.5-53.0%)] and wanted to be more involved in their care [39.4% (15.5-61.7%)]. Participation in diabetes educational programmes was low [23.1% (9.4-43.3%)], although most of those who participated found them helpful [72.1% (42.1-90.3%)].

CONCLUSIONS: Diabetes has a negative impact on family members of people with diabetes. DAWN2 provides benchmarking indicators of family members' psychosocial needs that will help identify the support required for, and from, them to improve the lives of people with diabetes and their families.

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More information

Published date: July 2013
Organisations: Human Development & Health

Identifiers

Local EPrints ID: 355185
URI: http://eprints.soton.ac.uk/id/eprint/355185
ISSN: 0742-3071
PURE UUID: c0ac2f94-dee6-4325-8692-1a7e1e89e37e
ORCID for R.I.G. Holt: ORCID iD orcid.org/0000-0001-8911-6744

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Date deposited: 13 Aug 2013 14:19
Last modified: 27 Jan 2024 02:38

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Contributors

Author: K Kovacs Burns
Author: A Nicolucci
Author: R.I.G. Holt ORCID iD
Author: I Willaing
Author: N Hermanns

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