'What I want clinicians to know'-experiences of people with arthritis

Abstract

Aim:To explore the perceptions and experiences of people with osteoarthrits (OA) and rheumatoid arthritis (RA) regarding the knowledge and skills they want nurses and allied health professionals (AHPs) to have to manage their care needs.

Method: two condition-specific focus groups were conducted in London with five people with OA and eight people with RA in January 2011. A semistructured interview guide was used.The focus groups were audiotaped and the trascipts analysed using content analysis.

Results: shared and condition specific themes were identified. The shared themes were: living with pain; the need for self-management; and meaningful consultation. The condition-specific themes were: no experts in OA; and wanting to talk in the RA participants.

Conclusion: people with OA and RA wanted nurses and AHPs to listen, empathise and help them to manage their condition especially the pain. Participants with RA would value psychological support.We need to ensure that nurses and AHPs have the knowledge and skills to address these needs.

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