Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not
Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not
The need to investigate multiple relatives in order to decide whether or not a finding is clinically significant has implications for consent and disclosure practices. Communication with, and care for, relatives who have no reason to suspect particular diagnoses is a challenge for any health-care service. These costs also need to be taken into account as genetic testing enters mainstream medicine
896-899
Crawford, Gillian
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Foulds, Nicola
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Fenwick, Angela
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Hallowell, Nina
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Lucassen, Anneke
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November 2013
Crawford, Gillian
c49ec103-2936-4897-8f25-96abe25b3a9f
Foulds, Nicola
5e153e9f-caae-45f5-b6f0-943bd567558e
Fenwick, Angela
95a1f4fa-7f6f-4c07-a93b-9ea39c231c31
Hallowell, Nina
671cbd1f-fb44-40bc-86eb-be2b1d4d73ed
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Crawford, Gillian, Foulds, Nicola, Fenwick, Angela, Hallowell, Nina and Lucassen, Anneke
(2013)
Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not.
Genetics in Medicine, 15 (11), .
(doi:10.1038/gim.2013.165).
(PMID:24091799)
Abstract
The need to investigate multiple relatives in order to decide whether or not a finding is clinically significant has implications for consent and disclosure practices. Communication with, and care for, relatives who have no reason to suspect particular diagnoses is a challenge for any health-care service. These costs also need to be taken into account as genetic testing enters mainstream medicine
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Accepted/In Press date: 3 October 2013
Published date: November 2013
Organisations:
Cancer Sciences, Human Development & Health, Medical Education
Identifiers
Local EPrints ID: 358554
URI: http://eprints.soton.ac.uk/id/eprint/358554
ISSN: 1098-3600
PURE UUID: b15d95b5-6fde-4195-bc7d-44d833566dc2
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Date deposited: 08 Oct 2013 13:59
Last modified: 15 Mar 2024 03:11
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Author:
Nicola Foulds
Author:
Angela Fenwick
Author:
Nina Hallowell
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