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Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): a systematic review

Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): a systematic review
Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): a systematic review
The International Classification of Functioning children and youth version (ICF-CY) provides a universal framework for defining and classifying functioning and disability in children worldwide. To facilitate the application of the ICF in practice, ICF based-tools like the “ICF Core Sets” are being developed. In the context of the development of the ICF-CY Core Sets for children with Cerebral Palsy (CP), the aims of this study were as follows: to identify and compare the content of outcome measures used in studies of children with CP using the ICF-CY coding system; and to describe the most frequently addressed areas of functioning in those studies. We searched multiple databases likely to capture studies involving children with CP from January 1998 to March 2012. We included all English language articles that studied children aged 2–18 years and described an interventional or observational study. Constructs of the outcome measures identified in studies were linked to the ICF-CY by two trained professionals. We found 231 articles that described 238 outcome measures. The outcome measures contained 2193 concepts that were linked to the ICF-CY and covered 161 independent ICF-CY categories. Out of the 161 categories, 53 (33.5%) were related to body functions, 75 (46%) were related to activities/participation, 26 (16.1%) were related to environmental factors, and 7 (4.3%) were related to body structures. This systematic review provides information about content of measures that may guide researchers and clinicians in their selection of an outcome measure for use in a study and/or clinical practice with children with CP.

cerebral palsy, systematic review, outcome measures, international classfication of functioning, content comparison, child
1090-3798
1-12
Schiariti, V.
b485765e-19d4-4a3f-ad7e-5ac2ee07de71
Klassen, A.F.
cf77f637-c86c-4346-8b0d-1813437b8d74
Cieza, A.
a0df25c5-ee2c-4580-82b3-d0a75591580e
Sauve, K.
620f01f6-4509-45a8-9251-ed6b775ca290
O’Donnell, M.
02143726-dd00-4d8d-9c9e-2bab1c4944e8
Armstrong, R.
c1cf75df-a0d8-4416-a8b8-3b75736ff8aa
Mâsse, L.C.
286e314c-9736-4ea0-80cd-3e5481ccfdf4
Schiariti, V.
b485765e-19d4-4a3f-ad7e-5ac2ee07de71
Klassen, A.F.
cf77f637-c86c-4346-8b0d-1813437b8d74
Cieza, A.
a0df25c5-ee2c-4580-82b3-d0a75591580e
Sauve, K.
620f01f6-4509-45a8-9251-ed6b775ca290
O’Donnell, M.
02143726-dd00-4d8d-9c9e-2bab1c4944e8
Armstrong, R.
c1cf75df-a0d8-4416-a8b8-3b75736ff8aa
Mâsse, L.C.
286e314c-9736-4ea0-80cd-3e5481ccfdf4

Schiariti, V., Klassen, A.F., Cieza, A., Sauve, K., O’Donnell, M., Armstrong, R. and Mâsse, L.C. (2014) Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): a systematic review. European Journal of Paediatric Neurology, 18 (1), 1-12. (doi:10.1016/j.ejpn.2013.08.001). (PMID:24051208)

Record type: Article

Abstract

The International Classification of Functioning children and youth version (ICF-CY) provides a universal framework for defining and classifying functioning and disability in children worldwide. To facilitate the application of the ICF in practice, ICF based-tools like the “ICF Core Sets” are being developed. In the context of the development of the ICF-CY Core Sets for children with Cerebral Palsy (CP), the aims of this study were as follows: to identify and compare the content of outcome measures used in studies of children with CP using the ICF-CY coding system; and to describe the most frequently addressed areas of functioning in those studies. We searched multiple databases likely to capture studies involving children with CP from January 1998 to March 2012. We included all English language articles that studied children aged 2–18 years and described an interventional or observational study. Constructs of the outcome measures identified in studies were linked to the ICF-CY by two trained professionals. We found 231 articles that described 238 outcome measures. The outcome measures contained 2193 concepts that were linked to the ICF-CY and covered 161 independent ICF-CY categories. Out of the 161 categories, 53 (33.5%) were related to body functions, 75 (46%) were related to activities/participation, 26 (16.1%) were related to environmental factors, and 7 (4.3%) were related to body structures. This systematic review provides information about content of measures that may guide researchers and clinicians in their selection of an outcome measure for use in a study and/or clinical practice with children with CP.

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e-pub ahead of print date: 17 September 2013
Published date: January 2014
Keywords: cerebral palsy, systematic review, outcome measures, international classfication of functioning, content comparison, child
Organisations: Psychology

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Local EPrints ID: 358613
URI: https://eprints.soton.ac.uk/id/eprint/358613
ISSN: 1090-3798
PURE UUID: f0792ceb-62fe-4ed2-b0f7-5a84ca68cb2c

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Date deposited: 14 Oct 2013 09:35
Last modified: 09 Sep 2019 18:46

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