Development and initial validation of a new outcome measure for hospice and palliative care: the St Christopher’s Index of Patient Priorities (SKIPP)
Development and initial validation of a new outcome measure for hospice and palliative care: the St Christopher’s Index of Patient Priorities (SKIPP)
Objective: To develop and conduct a preliminary psychometric analysis of a hospice and palliative care patient-reported outcome measure to detect patients’ perceptions of change in quality of life (QoL) and issues of concern, and views of service benefit.
Methods: Following pilot testing and cognitive interviewing, St Christopher's Index of Patient Priorities (SKIPP) was administered twice to hospice inpatients and homecare patients. QoL was rated ‘now’, and retrospectively ‘before starting hospice care’ or ‘at the time of the first interview’. Patients nominated and rated progress with main concerns, rated the difference the service was making, and completed palliative care outcome scale. Patients completed SKIPP again within 24?h to measure test-retest reliability.
Results: QoL scores ‘now’ differed significantly from retrospective scores made at same time: QoL increased with hospice care when patients ‘looked back’ on previous QoL. Four-fifths reported that their first concern had got ‘a little’/ ‘much’ better since initial service contact: this declined subsequently. Four-fifths at both time points said the hospice had made ‘a lot of difference’ to them. No significant differences were noted between time points on palliative care outcome scale items. Test-retest analyses were prevented by low numbers.
Conclusions: SKIPP can detect patients’ perception of change in QoL and main concerns, and the difference patients think the service has made to them. Its design with current and retrospective components addresses response shift and means it can be used for quality improvement or clinical purposes with only one administration, an advantage in frail populations. It is therefore a useful addition to hospice and palliative care patient-reported outcome measures.
175–181
Addington-Hall, Julia
87560cc4-7562-4f9b-b908-81f3b603fdd8
Hunt, Katherine
5eab8123-1157-4d4e-a7d9-5fd817218c6e
Rowsell, Ali
058f3917-b556-4eef-a393-4c025a3c4ccb
Heal, Rosanna
55b06e53-c817-4e23-b32d-3760577af7e3
Hansford, Penny
6e64df8e-9a8c-4c7d-8da1-3825c17c1687
Monroe, Barbara
4522da85-5d99-437a-ba12-e63db2b8d4c2
Sykes, Nigel
71860858-8a30-41a1-a1e2-ac3d1176db5a
2014
Addington-Hall, Julia
87560cc4-7562-4f9b-b908-81f3b603fdd8
Hunt, Katherine
5eab8123-1157-4d4e-a7d9-5fd817218c6e
Rowsell, Ali
058f3917-b556-4eef-a393-4c025a3c4ccb
Heal, Rosanna
55b06e53-c817-4e23-b32d-3760577af7e3
Hansford, Penny
6e64df8e-9a8c-4c7d-8da1-3825c17c1687
Monroe, Barbara
4522da85-5d99-437a-ba12-e63db2b8d4c2
Sykes, Nigel
71860858-8a30-41a1-a1e2-ac3d1176db5a
Addington-Hall, Julia, Hunt, Katherine, Rowsell, Ali, Heal, Rosanna, Hansford, Penny, Monroe, Barbara and Sykes, Nigel
(2014)
Development and initial validation of a new outcome measure for hospice and palliative care: the St Christopher’s Index of Patient Priorities (SKIPP).
BMJ Supportive & Palliative Care, 4 (2), .
(doi:10.1136/bmjspcare-2012-000352).
Abstract
Objective: To develop and conduct a preliminary psychometric analysis of a hospice and palliative care patient-reported outcome measure to detect patients’ perceptions of change in quality of life (QoL) and issues of concern, and views of service benefit.
Methods: Following pilot testing and cognitive interviewing, St Christopher's Index of Patient Priorities (SKIPP) was administered twice to hospice inpatients and homecare patients. QoL was rated ‘now’, and retrospectively ‘before starting hospice care’ or ‘at the time of the first interview’. Patients nominated and rated progress with main concerns, rated the difference the service was making, and completed palliative care outcome scale. Patients completed SKIPP again within 24?h to measure test-retest reliability.
Results: QoL scores ‘now’ differed significantly from retrospective scores made at same time: QoL increased with hospice care when patients ‘looked back’ on previous QoL. Four-fifths reported that their first concern had got ‘a little’/ ‘much’ better since initial service contact: this declined subsequently. Four-fifths at both time points said the hospice had made ‘a lot of difference’ to them. No significant differences were noted between time points on palliative care outcome scale items. Test-retest analyses were prevented by low numbers.
Conclusions: SKIPP can detect patients’ perception of change in QoL and main concerns, and the difference patients think the service has made to them. Its design with current and retrospective components addresses response shift and means it can be used for quality improvement or clinical purposes with only one administration, an advantage in frail populations. It is therefore a useful addition to hospice and palliative care patient-reported outcome measures.
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Accepted/In Press date: 16 August 2013
e-pub ahead of print date: 16 September 2013
Published date: 2014
Organisations:
Faculty of Health Sciences
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Local EPrints ID: 358913
URI: http://eprints.soton.ac.uk/id/eprint/358913
ISSN: 2045-435X
PURE UUID: 7a01327c-cc30-470d-945c-c659209e15ae
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Date deposited: 15 Oct 2013 11:08
Last modified: 15 Mar 2024 03:36
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Author:
Rosanna Heal
Author:
Penny Hansford
Author:
Barbara Monroe
Author:
Nigel Sykes
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