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Assessment of functional outcomes in head and neck cancer

Assessment of functional outcomes in head and neck cancer
Assessment of functional outcomes in head and neck cancer
The goals of the present publication are (a) to identify standardised methods and tools applied in clinical trials and cohort studies to assess key functional aspects in HNC, using the Brief ICF Core Set for head and neck cancer (ICF-HNC) as a reference and (b) to propose a set of sound standardised methods and tools suitable to assess functional problems in HNC. This work contributed to the development of practical ICF-HNC based guidelines targeting the standardised measurement of functional outcomes in HNC follow-up and clinical research in Germany. A systematic review of randomised and clinical controlled trials, and observational studies in HNC were carried out to identify standardised methods and tools. Suitable methods and tools were then selected based on pre-defined criteria. 210 assessment methods and tools were identified in 136 studies: 146 patients reported outcomes (PRO) and 64 tools rated by health professionals. Altogether 59 tools were considered suitable to be included in guidelines: four side effects classifications, two performance status scales, 31 PROs, 10 assessment criteria for clinical examinations, seven assessment methods and tools for the evaluation of technical, equipment-based procedures and five technical, equipment-based procedures. It was possible to identify and select sound and standardised assessment methods and tools for almost all functioning areas defined in the ICF-HNC. Since no tool sufficiently covers support provision by immediate family and by health professionals as well as economic self-sufficiency, we recommend a corresponding update of existing tools.
head and neck cancer, outcomes research, outcome measure, recovery of function, ICF
0937-4477
2021-2044
Stier-Jarmer, Marita
95747ec9-72a4-43e5-a1a6-0adec13813a0
Sabariego, Carla
5caee823-f6fd-45a7-bbbb-990459603d27
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Harreus, Ulrich
5b37bc08-0d4a-4827-b4f8-186b754d2199
Tschiesner, Uta
ed8dc63b-bb54-4124-a57a-92e22167a144
Stier-Jarmer, Marita
95747ec9-72a4-43e5-a1a6-0adec13813a0
Sabariego, Carla
5caee823-f6fd-45a7-bbbb-990459603d27
Cieza, Alarcos
a0df25c5-ee2c-4580-82b3-d0a75591580e
Harreus, Ulrich
5b37bc08-0d4a-4827-b4f8-186b754d2199
Tschiesner, Uta
ed8dc63b-bb54-4124-a57a-92e22167a144

Stier-Jarmer, Marita, Sabariego, Carla, Cieza, Alarcos, Harreus, Ulrich and Tschiesner, Uta (2014) Assessment of functional outcomes in head and neck cancer. European Archives of Oto-Rhino-Laryngology, 271 (7), 2021-2044. (doi:10.1007/s00405-013-2744-1). (PMID:24114063)

Record type: Article

Abstract

The goals of the present publication are (a) to identify standardised methods and tools applied in clinical trials and cohort studies to assess key functional aspects in HNC, using the Brief ICF Core Set for head and neck cancer (ICF-HNC) as a reference and (b) to propose a set of sound standardised methods and tools suitable to assess functional problems in HNC. This work contributed to the development of practical ICF-HNC based guidelines targeting the standardised measurement of functional outcomes in HNC follow-up and clinical research in Germany. A systematic review of randomised and clinical controlled trials, and observational studies in HNC were carried out to identify standardised methods and tools. Suitable methods and tools were then selected based on pre-defined criteria. 210 assessment methods and tools were identified in 136 studies: 146 patients reported outcomes (PRO) and 64 tools rated by health professionals. Altogether 59 tools were considered suitable to be included in guidelines: four side effects classifications, two performance status scales, 31 PROs, 10 assessment criteria for clinical examinations, seven assessment methods and tools for the evaluation of technical, equipment-based procedures and five technical, equipment-based procedures. It was possible to identify and select sound and standardised assessment methods and tools for almost all functioning areas defined in the ICF-HNC. Since no tool sufficiently covers support provision by immediate family and by health professionals as well as economic self-sufficiency, we recommend a corresponding update of existing tools.

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Stier-Jarmer et al 2014.pdf - Version of Record
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More information

e-pub ahead of print date: 10 October 2013
Published date: 10 July 2014
Keywords: head and neck cancer, outcomes research, outcome measure, recovery of function, ICF
Organisations: Psychology

Identifiers

Local EPrints ID: 359988
URI: https://eprints.soton.ac.uk/id/eprint/359988
ISSN: 0937-4477
PURE UUID: fe2ac43b-14db-4dca-b410-b2f59c70516d

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Date deposited: 20 Nov 2013 13:41
Last modified: 30 Jul 2019 18:48

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Contributors

Author: Marita Stier-Jarmer
Author: Carla Sabariego
Author: Alarcos Cieza
Author: Ulrich Harreus
Author: Uta Tschiesner

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