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Privileging place: reflections on involving people with dementia in a residency

Privileging place: reflections on involving people with dementia in a residency
Privileging place: reflections on involving people with dementia in a residency
Although attention is paid to involving people with dementia as collaborators in research, the issue of place – where involvement actually occurs – has been neglected.This is significant because we know from the academic literature that places can adversely affect social relations and a person’s ability to participate as equal partners. This paper privileges place and documents our experiences of running residencies in the English Lake District with people with dementia – Houston, Gardiner and Wallace all have some form of dementia. In doing so we provide a model to reference for involving people with dementia in research and knowledge production, while simultaneously strengthening the evidence base for the residency as method for participatory research. People with dementia participated in two residencies to co-produce a touring exhibition and educational resource as part of a research dissemination project.We found that by privileging place a more equitable, productive, healthier, and respectful way of involving people with dementia as collaborators in research dissemination could be realised. The project has wider implications for the involvement of people with dementia in not only research, but also public consultations, service evaluations, and policy-related work.
involvement, people with dementia, place, research dissemination, residency
1471-3012
Bartlett, Ruth
b059d54d-9431-43a8-9d1d-19d35ab57ac3
Hick, Caroline
2e9184ce-3e62-44fe-bbff-855d8179dd9c
Houston, Agnes
e946857b-8dd2-47d6-9aeb-2dbec01375bf
Wallace, Daphne
315cb36a-f4cf-43c3-bebe-e4a8ebf26ef2
Bartlett, Ruth
b059d54d-9431-43a8-9d1d-19d35ab57ac3
Hick, Caroline
2e9184ce-3e62-44fe-bbff-855d8179dd9c
Houston, Agnes
e946857b-8dd2-47d6-9aeb-2dbec01375bf
Wallace, Daphne
315cb36a-f4cf-43c3-bebe-e4a8ebf26ef2

Bartlett, Ruth, Hick, Caroline and Houston, Agnes et al. (2013) Privileging place: reflections on involving people with dementia in a residency. Dementia. (doi:10.1177/1471301213512116).

Record type: Article

Abstract

Although attention is paid to involving people with dementia as collaborators in research, the issue of place – where involvement actually occurs – has been neglected.This is significant because we know from the academic literature that places can adversely affect social relations and a person’s ability to participate as equal partners. This paper privileges place and documents our experiences of running residencies in the English Lake District with people with dementia – Houston, Gardiner and Wallace all have some form of dementia. In doing so we provide a model to reference for involving people with dementia in research and knowledge production, while simultaneously strengthening the evidence base for the residency as method for participatory research. People with dementia participated in two residencies to co-produce a touring exhibition and educational resource as part of a research dissemination project.We found that by privileging place a more equitable, productive, healthier, and respectful way of involving people with dementia as collaborators in research dissemination could be realised. The project has wider implications for the involvement of people with dementia in not only research, but also public consultations, service evaluations, and policy-related work.

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More information

e-pub ahead of print date: 2 December 2013
Keywords: involvement, people with dementia, place, research dissemination, residency
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 360309
URI: https://eprints.soton.ac.uk/id/eprint/360309
ISSN: 1471-3012
PURE UUID: 84267639-b3ac-4b7e-827d-197c9548d3aa
ORCID for Ruth Bartlett: ORCID iD orcid.org/0000-0002-3412-2300

Catalogue record

Date deposited: 04 Dec 2013 11:19
Last modified: 06 Jun 2018 12:31

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