The University of Southampton
University of Southampton Institutional Repository

Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication

Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication
Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication
Background: cancer accounts for 1 in 4 deaths in the UK. A majority of people with advanced cancer will experience pain and family carers play an important role in managing pain medication at home. There is evidence carers need support with this, yet no research in the UK has developed and tested theory-driven interventions to help them manage pain medicines. We are conducting a Phase I-II feasibility study (as defined by the Medical Research Council guidelines for developing a complex intervention) to develop a new intervention: Cancer Carer Medicines Management (CCMM).

Aim: to summarise the development of CCMM, outlining the process of intervention development.

Method: a staged multi-method approach was used to obtain current evidence to inform CCMM's development: a systematic literature review of interventions for carer end of life medicines management; a scoping exercise concerning practice and theoretical contexts; interviews and user involvement group consultations with patients, carers, and health professionals with palliative care experience. This information informed two workshops which used participatory action research processes to design and develop an intervention which will be further refined through a consultative review process.

Results: to date we have found that this staged approach is appropriate and successful in enabling an evidence based intervention to be designed collaboratively. This also provides a means by which the clinical applicability of the intervention can be refined as it develops.

Conclusions: refining this intervention as it develops will ensure that it reaches the feasibility trial stage with a robust grounding in carer experience, clinical practice and research evidence. In turn, the intervention will have the potential to enhance the practice of nurses in the community to meet carers' needs in pain medication management. This project is funded by the Dimbleby Marie Curie Cancer Care Research Fund; grant number DCMD-RF-12-05.
A7-A7
Hopkinson, Jane B.
c656f8e9-7962-4bdc-87ea-e26e12ff1d24
Hughes, Jacki
3edde8fa-ddf1-477b-b032-eee273acc0b1
Lowson, Elizabeth
5f1664ff-e3ad-46d1-b318-c89786a76404
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Duke, S.
f0dc024d-f940-4f43-b5f9-adab34833ce7
Anstey, Sally
2c4a2c66-7347-490c-8a57-a7ca8623ebaf
Bennett, Mike
44253467-ad67-4de7-a661-db61ca6a7bab
Smith, Peter W.F.
961a01a3-bf4c-43ca-9599-5be4fd5d3940
May, Carl
17697f8d-98f6-40d3-9cc0-022f04009ae4
Latter, S.
83f100a4-95ec-4f2e-99a5-186095de2f3b
Hopkinson, Jane B.
c656f8e9-7962-4bdc-87ea-e26e12ff1d24
Hughes, Jacki
3edde8fa-ddf1-477b-b032-eee273acc0b1
Lowson, Elizabeth
5f1664ff-e3ad-46d1-b318-c89786a76404
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Duke, S.
f0dc024d-f940-4f43-b5f9-adab34833ce7
Anstey, Sally
2c4a2c66-7347-490c-8a57-a7ca8623ebaf
Bennett, Mike
44253467-ad67-4de7-a661-db61ca6a7bab
Smith, Peter W.F.
961a01a3-bf4c-43ca-9599-5be4fd5d3940
May, Carl
17697f8d-98f6-40d3-9cc0-022f04009ae4
Latter, S.
83f100a4-95ec-4f2e-99a5-186095de2f3b

Hopkinson, Jane B., Hughes, Jacki, Lowson, Elizabeth, Richardson, Alison, Duke, S., Anstey, Sally, Bennett, Mike, Smith, Peter W.F., May, Carl and Latter, S. (2014) Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication. 2014 Annual Marie Curie Research Conference 'Palliative care in the community - making a difference in practice'. A7-A7 . (doi:10.1136/bmjspcare-2014-000654.18).

Record type: Conference or Workshop Item (Other)

Abstract

Background: cancer accounts for 1 in 4 deaths in the UK. A majority of people with advanced cancer will experience pain and family carers play an important role in managing pain medication at home. There is evidence carers need support with this, yet no research in the UK has developed and tested theory-driven interventions to help them manage pain medicines. We are conducting a Phase I-II feasibility study (as defined by the Medical Research Council guidelines for developing a complex intervention) to develop a new intervention: Cancer Carer Medicines Management (CCMM).

Aim: to summarise the development of CCMM, outlining the process of intervention development.

Method: a staged multi-method approach was used to obtain current evidence to inform CCMM's development: a systematic literature review of interventions for carer end of life medicines management; a scoping exercise concerning practice and theoretical contexts; interviews and user involvement group consultations with patients, carers, and health professionals with palliative care experience. This information informed two workshops which used participatory action research processes to design and develop an intervention which will be further refined through a consultative review process.

Results: to date we have found that this staged approach is appropriate and successful in enabling an evidence based intervention to be designed collaboratively. This also provides a means by which the clinical applicability of the intervention can be refined as it develops.

Conclusions: refining this intervention as it develops will ensure that it reaches the feasibility trial stage with a robust grounding in carer experience, clinical practice and research evidence. In turn, the intervention will have the potential to enhance the practice of nurses in the community to meet carers' needs in pain medication management. This project is funded by the Dimbleby Marie Curie Cancer Care Research Fund; grant number DCMD-RF-12-05.

This record has no associated files available for download.

More information

Published date: 2014
Additional Information: Abstracts of the 2014 Palliative Care Congress
Venue - Dates: 2014 Annual Marie Curie Research Conference 'Palliative care in the community - making a difference in practice', 2014-01-01
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 363548
URI: http://eprints.soton.ac.uk/id/eprint/363548
PURE UUID: a147de09-ae52-474e-94c5-bcecdf169ff9
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755
ORCID for S. Duke: ORCID iD orcid.org/0000-0002-4058-8086
ORCID for Peter W.F. Smith: ORCID iD orcid.org/0000-0003-4423-5410
ORCID for Carl May: ORCID iD orcid.org/0000-0002-0451-2690
ORCID for S. Latter: ORCID iD orcid.org/0000-0003-0973-0512

Catalogue record

Date deposited: 27 Mar 2014 11:09
Last modified: 15 Mar 2024 03:34

Export record

Altmetrics

Contributors

Author: Jane B. Hopkinson
Author: Jacki Hughes
Author: Elizabeth Lowson
Author: S. Duke ORCID iD
Author: Sally Anstey
Author: Mike Bennett
Author: Carl May ORCID iD
Author: S. Latter ORCID iD

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×