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‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy

‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy
‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy
AIMS In the context of the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for children and adolescents with cerebral palsy (CP), we investigated the strengths and limitations in functioning important to children with CP, through either child self-reports or caregiver proxy reports, using components of the International Classification of Functioning, Disability and Health for Children and Youth (ICFCY).
METHOD We conducted semi-structured interviews with 10 children with CP (children selfreporting), 10 caregivers of children self-reporting (10 child–caregiver dyads), and 12 caregivers of children not self-reporting. Mean age 10y 6mo, range 4–16y. A convenience sample was recruited representing Gross Motor Function Classification System (GMFCS) levels I to V. Interviews were audio-taped and the content covered all of the relevant ICF-CY components. The interviews were then transcribed verbatim and coded in N-Vivo 10 using the ICF-CY coding system.
RESULTS We identified 1956 themes that linked to 175 ICF-CY categories. Most of the themes were represented by the ICF-CY components activities and participation and environmental factors. The children interviewed discussed issues related to mobility, self-care, and recreation and leisure, whereas the caregivers focused more on physical limitations and on the environmental factors associated with everyday activities.
INTERPRETATION The children and their caregivers described many of the same areas of functioning but provided unique perspectives. Children talked more frequently about their abilities with CP, whereas the caregivers interviewed talked more about their concern over the limitations and broader issues facing their child. The findings highlight the need to explore the perspectives of both the child and the caregiver when characterizing the functional profile of children with CP.
0012-1622
853-861
Schiariti, V.
b485765e-19d4-4a3f-ad7e-5ac2ee07de71
Sauve, K.
620f01f6-4509-45a8-9251-ed6b775ca290
Klassen, A.F.
cf77f637-c86c-4346-8b0d-1813437b8d74
O'Donnell, M.
7fd028f8-b581-4e00-a893-25bfae6685f6
Cieza, A.
a0df25c5-ee2c-4580-82b3-d0a75591580e
Mâsse, L.C.
286e314c-9736-4ea0-80cd-3e5481ccfdf4
Schiariti, V.
b485765e-19d4-4a3f-ad7e-5ac2ee07de71
Sauve, K.
620f01f6-4509-45a8-9251-ed6b775ca290
Klassen, A.F.
cf77f637-c86c-4346-8b0d-1813437b8d74
O'Donnell, M.
7fd028f8-b581-4e00-a893-25bfae6685f6
Cieza, A.
a0df25c5-ee2c-4580-82b3-d0a75591580e
Mâsse, L.C.
286e314c-9736-4ea0-80cd-3e5481ccfdf4

Schiariti, V., Sauve, K., Klassen, A.F., O'Donnell, M., Cieza, A. and Mâsse, L.C. (2014) ‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy. Developmental Medicine and Child Neurology., 56 (9), 853-861. (doi:10.1111/dmcn.12472).

Record type: Article

Abstract

AIMS In the context of the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for children and adolescents with cerebral palsy (CP), we investigated the strengths and limitations in functioning important to children with CP, through either child self-reports or caregiver proxy reports, using components of the International Classification of Functioning, Disability and Health for Children and Youth (ICFCY).
METHOD We conducted semi-structured interviews with 10 children with CP (children selfreporting), 10 caregivers of children self-reporting (10 child–caregiver dyads), and 12 caregivers of children not self-reporting. Mean age 10y 6mo, range 4–16y. A convenience sample was recruited representing Gross Motor Function Classification System (GMFCS) levels I to V. Interviews were audio-taped and the content covered all of the relevant ICF-CY components. The interviews were then transcribed verbatim and coded in N-Vivo 10 using the ICF-CY coding system.
RESULTS We identified 1956 themes that linked to 175 ICF-CY categories. Most of the themes were represented by the ICF-CY components activities and participation and environmental factors. The children interviewed discussed issues related to mobility, self-care, and recreation and leisure, whereas the caregivers focused more on physical limitations and on the environmental factors associated with everyday activities.
INTERPRETATION The children and their caregivers described many of the same areas of functioning but provided unique perspectives. Children talked more frequently about their abilities with CP, whereas the caregivers interviewed talked more about their concern over the limitations and broader issues facing their child. The findings highlight the need to explore the perspectives of both the child and the caregiver when characterizing the functional profile of children with CP.

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e-pub ahead of print date: 29 April 2014
Published date: 2014
Organisations: Psychology

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Local EPrints ID: 364702
URI: https://eprints.soton.ac.uk/id/eprint/364702
ISSN: 0012-1622
PURE UUID: 4686dda6-9887-469d-8e67-cf4047440328

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Date deposited: 08 May 2014 09:51
Last modified: 16 Jul 2019 21:06

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