What are the outcomes of self-management that matter to stakeholders? Study protocol for the Self-management VOICED project

Abstract

Background: The number of people living with a long-term health condition is increasing. Self-management has been identified as a significant way of managing the burden of long-term health conditions for patients and for health services. It has been highlighted that increased support for self-management is needed and that services should be commissioned to underpin this. However, little is known about which outcomes of such support are meaningful to differing stakeholder groups. The protocol described in this paper describes a programme of research which aims to explore the outcomes of self-management support which are valued by patients, family or friends with caring responsibilities, health professionals and commissioners of self-management support services. This will ensure the relevance of future self-management support services to all stakeholder groups.

Methods: This research consists of three distinct but related phases. Phase one will systematically review the literature to identify which outcomes of self-management have been considered important. Phase two seeks to explore differing stakeholder perceptions of the preferred outcomes of self-management support. Phase three uses the findings from the previous phases to explore and map consensus and disparity regarding the outcomes of importance in a nationally derived Delphi process study.

Discussion: The findings will provide information regarding the outcomes of self-management support considered important by differing stakeholder groups and identify areas for development within self-management support interventions.

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Identifiers

ORCID for S. Latter: orcid.org/0000-0003-0973-0512

ORCID for Anne Kennedy: orcid.org/0000-0003-4570-9104

ORCID for C. Foster: orcid.org/0000-0002-4703-8378

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