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A Critical Analysis of the Implementation of Service User involvement in Primary Care Research and Health Service Development using Normalization Process Theory: revised draft May 21st 2014

A Critical Analysis of the Implementation of Service User involvement in Primary Care Research and Health Service Development using Normalization Process Theory: revised draft May 21st 2014
A Critical Analysis of the Implementation of Service User involvement in Primary Care Research and Health Service Development using Normalization Process Theory: revised draft May 21st 2014
Background: There have been recent important advances in conceptualizing and operationalizing involvement in health research and healthcare service development. However, problems persist in the field that impact on the scope for meaningful involvement to become a routine – normalised- way of working in primary care. In this review, we focus on current practice to critically interrogate factors known to be relevant for normalization – definition, enrolment, enactment and appraisal.

Method: Ours was a multidisciplinary, inter-agency team, with community representation. We searched EBSCO host for papers from 2007-2011 and engaged in an iterative, reflexive approach to sampling, appraising and analyzing the literature following the principles of a critical interpretive synthesis approach and using Normalization Process Theory.

Findings: Twenty-six papers were chosen from 289 papers, as a purposeful sample of work that is reported as service user involvement in the field. Few papers provided a clear working definition of service user involvement. The dominant identified rationale for enrolling service users in primary care projects was linked with policy imperatives for co-governance and emancipatory ideals. The majority of methodologies employed were standard health services research methods that do not qualify as research with service users. This indicates a lack of congruence between the stated aims and methods. Most studies only reported positive outcomes, raising questions about the balance or completeness of the published appraisals.

Conclusion: To improve normalisation of meaningful involvement in primary care, it is necessary to encourage explicit reporting of definitions, methodological innovation to enhance co-governance, and dissemination of research processes and findings.
1369-6513
1-32
Tierney, E.
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McEvoy, R.
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O'Reilly-de Brun, M.
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de brun, T.
121ab16d-0070-4ab2-97d2-97fd8304e555
Okonkwo, E.
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Rooney, M.
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Dowrick, C.F.
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Rogers, A.
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MacFarlane, A.
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Tierney, E.
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McEvoy, R.
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O'Reilly-de Brun, M.
578c85c0-d574-478d-89fd-9d8330a11efb
de brun, T.
121ab16d-0070-4ab2-97d2-97fd8304e555
Okonkwo, E.
4cb961e5-5fda-4a61-b6a9-3c9fa1112aa4
Rooney, M.
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Dowrick, C.F.
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Rogers, A.
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MacFarlane, A.
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Tierney, E., McEvoy, R., O'Reilly-de Brun, M., de brun, T., Okonkwo, E., Rooney, M., Dowrick, C.F., Rogers, A. and MacFarlane, A. (2014) A Critical Analysis of the Implementation of Service User involvement in Primary Care Research and Health Service Development using Normalization Process Theory: revised draft May 21st 2014. Health Expectations, 1-32. (In Press)

Record type: Article

Abstract

Background: There have been recent important advances in conceptualizing and operationalizing involvement in health research and healthcare service development. However, problems persist in the field that impact on the scope for meaningful involvement to become a routine – normalised- way of working in primary care. In this review, we focus on current practice to critically interrogate factors known to be relevant for normalization – definition, enrolment, enactment and appraisal.

Method: Ours was a multidisciplinary, inter-agency team, with community representation. We searched EBSCO host for papers from 2007-2011 and engaged in an iterative, reflexive approach to sampling, appraising and analyzing the literature following the principles of a critical interpretive synthesis approach and using Normalization Process Theory.

Findings: Twenty-six papers were chosen from 289 papers, as a purposeful sample of work that is reported as service user involvement in the field. Few papers provided a clear working definition of service user involvement. The dominant identified rationale for enrolling service users in primary care projects was linked with policy imperatives for co-governance and emancipatory ideals. The majority of methodologies employed were standard health services research methods that do not qualify as research with service users. This indicates a lack of congruence between the stated aims and methods. Most studies only reported positive outcomes, raising questions about the balance or completeness of the published appraisals.

Conclusion: To improve normalisation of meaningful involvement in primary care, it is necessary to encourage explicit reporting of definitions, methodological innovation to enhance co-governance, and dissemination of research processes and findings.

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Accepted/In Press date: May 2014
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 366473
URI: http://eprints.soton.ac.uk/id/eprint/366473
ISSN: 1369-6513
PURE UUID: def153ea-7eff-41ba-b889-8e02999513a9

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Date deposited: 04 Jul 2014 15:58
Last modified: 14 Mar 2024 17:09

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Contributors

Author: E. Tierney
Author: R. McEvoy
Author: M. O'Reilly-de Brun
Author: T. de brun
Author: E. Okonkwo
Author: M. Rooney
Author: C.F. Dowrick
Author: A. Rogers
Author: A. MacFarlane

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