Citizenship in action: the lived experiences of citizens with dementia who campaign for social change
Citizenship in action: the lived experiences of citizens with dementia who campaign for social change
This article examines the experiences of citizens with dementia who campaign for social change, with a particular focus on the effects of campaigning on citizenry identity and psycho-emotional well-being. In diary-interviews, 16 people with dementia recorded and described their experiences of campaigning. Findings revealed that although campaigning can be energising and reaffirming of citizen identity, because it (re)located a person within the realm of work, individuals may experience dementia-related fatigue and oppression linked to normative expectations about what someone with dementia ‘should’ be like. The discussion is linked to critical debates within disability studies about the psycho-emotional aspects of impairment and disability, and concludes that the struggle for citizenship has only just begun for people with dementia.
dementia, citizenship, campaigning, identity, psycho-emotional
1291-1304
Bartlett, Ruth
b059d54d-9431-43a8-9d1d-19d35ab57ac3
29 July 2014
Bartlett, Ruth
b059d54d-9431-43a8-9d1d-19d35ab57ac3
Bartlett, Ruth
(2014)
Citizenship in action: the lived experiences of citizens with dementia who campaign for social change.
Disability & Society, 29 (8), .
(doi:10.1080/09687599.2014.924905).
Abstract
This article examines the experiences of citizens with dementia who campaign for social change, with a particular focus on the effects of campaigning on citizenry identity and psycho-emotional well-being. In diary-interviews, 16 people with dementia recorded and described their experiences of campaigning. Findings revealed that although campaigning can be energising and reaffirming of citizen identity, because it (re)located a person within the realm of work, individuals may experience dementia-related fatigue and oppression linked to normative expectations about what someone with dementia ‘should’ be like. The discussion is linked to critical debates within disability studies about the psycho-emotional aspects of impairment and disability, and concludes that the struggle for citizenship has only just begun for people with dementia.
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FINALCitizenship in Actionsubmissiondocx.pdf
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More information
Accepted/In Press date: 13 May 2014
e-pub ahead of print date: 29 July 2014
Published date: 29 July 2014
Keywords:
dementia, citizenship, campaigning, identity, psycho-emotional
Organisations:
Faculty of Health Sciences
Identifiers
Local EPrints ID: 367554
URI: http://eprints.soton.ac.uk/id/eprint/367554
ISSN: 0968-7599
PURE UUID: c446b505-bef8-47f9-ae52-1e544bd89c1c
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Date deposited: 01 Aug 2014 09:23
Last modified: 15 Mar 2024 03:39
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